Wanted to provide my ongoing update re my journey. It's been 2 years since diagnosis, where I had dreamt of remission.
So I visited my Rhemy today at his request, only to be told:
- inflammation has increased two fold having been on this xeljanz, tofacitinib since 5th September 2018. Things seems to have only got worse with inflammation spreading rapidly. So what was the point in having me continue with these tablet, ! My Rheumy said it should have kicked in after 7 days!
He exclaimed, I don't understand why nothing is working for you.
- yet another biologic! Sarilumab (never heard of this one, sounds too new). It's an injection I need to take every two week. It is an IL6. Is anyone taking this one? Do share your thoughts please.
I am so perturbed with RD and all this medication - is it doing more harm than good I am left thinking. I eat healthy, and seem to do all the right things only to end up worse than ever. This is so disheartening. I know I need to persevere for future longevity health wise.
As of now, off all RA medication and on a month’s worth of Prednisolene to tackle this wretched inflammation, that is going no where fast.
Hope everyone is coping well. Look after yourselves, that’s all we can do. Keep the faith. 😌