No active MS ( hip hip Hooray!!), but back to rheumatology...

[Cherub198889]

I am a mystery to the medical community, they don't know what is going on with me, and I must admit that I am scared.... I have been diagnosed many times, only to discover that the diagnosis gets taken away... So many misdiagnosis with scary diseases...here is my list so far:

Lupus, Rheumatoid arthritis, Reactive Arthritis, Systemic inflammation Syndrome, Psoriatic Arthritis....and the one disease I fear most,... Multiple Sclerosis.

I fear MS because I was diagnosed with MS in 1990. I always felt that I was one of the lucky few whose MS was benign....I spent the last 28 years with the security of my MS being benign . ...I must admit that I was "gob smacked devastated " when I learned , this past spring, that the diagnosis of "benign MS" no longer exists!! ....EEK!

Anyways, there was no active MS this past spring when my leg went numb. Apparently an "Island of swelling" was pressing on a nerve that controlled my leg, thus making my leg numb.

I am fortunate to live in a city that is the number 1 global leader in MS research. & I am proud to say that the MS clinic at UBC says that I have no active MS....YAY!!!

So...why do I still have "islands of swellings?" ....The MS clinic at UBC has referred me back to rheumatology.,,grrr

Thanks for listening to my rant,

Sue

PS....If you are thinking about immigrating to Canada, you should understand Canada is globally ranked number 1 in:

Hockey!! ( we just love hockey <3)

Maple syrup!! (yum!!)

Multiple Sclerosis (grrr... Canada is the leader of MS. So many victims of MS live here ...grrr)

[Hidden]

I went to Canada years ago. Canadians are so friendly! Hated hockey at school but enjoyed watching ice hockey, maple syrup is far too sweet and I can imagine you don't want to need the 'centre of excellence'. It sounds like you have had a busy time. I wonder if all immune diseases are rather guesswork, but hope you find treatment that works, whatever name it is treating!

[Hidden]

So glad it’s not MS sue. I would love to visit Canada 🇨🇦 sounds amazing: my parents had spectacular holiday there some years ago, loved it. Are they thinking R.A. again then, sounds like you ve gone full circle 😀

[Cherub198889 in reply to Hidden]

Full circle indeed! I don't know what they are thinking, but my GP says that there is definitely some type of inflammation going on with me.

[helixhelix]

What a blow....I can't recall if you'd found a decent rheumatologist? Hope so. And do you feel pretty ok apart from numb leg? As that's a good sign if you do.

Look up Kadeena Cox, inspirational young woman who brings a smile to my face.

By the way, isn't Canada no 1 in Poutine as well? Yuk.

[daisychains58]

Well that must be a huge relief for,you but none the less, your still a mystery.... Im a bit the same... I don’t think the medical profession knows that much about the cause of inflammation let alone a specific label for it.

Keep well. Blessing to ya from Oz.

[Lizbain1]

I have ms... The mtx seems to help a little