I had first fortnightly MTX-related bloodiest at 9.50am today. Woke up every 2 hours at least last night with leg cramps (get 'em constantly - what is that about?) & so overslept, it was 9.31 when I looked at the time! Miraculously got my dishevelled, foul-tempered self to doctors just one minute late!
The annoying thing on the wall that you have to watch for your turn said that the Practice Nurse was running late. She emerged from her room a couple of times, obviously in pain herself and barely able to walk. I looked around the waiting room: predominantly female clientele, mostly with sticks, some with one hand closed and held in a protective way, some men: ditto. I reckoned it had to be DMARD blood test day and here they were: a whole load of local folk with Rheumatoid Arthritis or similar. A few months ago I wouldn't have seen the signs, they wouldn't have meant anything to me. Eventually the Practice Nurse appeared with her bag & coat and left the building. Does she have RA? I was beginning to wonder if everybody does.
In town it's even more striking - the high percentage of people with sticks or a limp or that closed hand maybe grimacing briefly with pain before putting the public face back on. I never noticed them before. And it's not because disability or impairment are alien to me - my Mum had multiple sclerosis - I thought I was 'aware'.
A link I ended up on via the RA Warrior site claimed that 1 in a 100 people worldwide have Rheumatoid Arthritis! That's huge - why isn't there more noise about it? I must have met people with the disease, worked with them maybe but I can't remember one person telling me that they had it.
When I get my head around my own disease (okay, that's a bit ambitious ... 'when I get a bit more used to this / get a firm diagnosis') I want to do something, but I don't know what yet.
(I eventually did get my blood test done by another nurse who appeared unfashionably healthy.)
Hope you all have a good day x