Had to stop secukinumab150mg biologics

[Amy65]

Was taken of these biologics due to side affects sore ears sinus trouble violently sick .of them 6 weeks today I'm in massive flair ment to c my rheaumtoglist this month but he's so busy there's no appointment till 7th Aug. So I rang specialist NURSE for advice she told me to come up to c her .she checked my joints a lot hot and knees full of fluid .she gave me depo injection in bottom to dampen things down .asked were my stick was told her I'm sick of people saying I look well .she said cause I have a few hidden disability dosent mean I'm ok I have battled these conditions since 1993 .does anyone else get annoyed when people say they look ok .how do u reply amy

[karenpenn]

Hi Amy yes it is annoying as people don't know how you are feeling in the body as people like us try to keep their chins up and even though I am in a lot of pain. Due to start this med next week unless the Biologics Nurse thinks I need a different one. This is my first appointment with her do they start the treatment straight away that day. Good Luck

[Amy65 in reply to karenpenn]

Hi karenpenn yes we do try and keep are our chip.as far as I know when u c the nurse she does urine test etc if all is ok u start biologics .it's slightly different in n.ireland we attend day word in hospital and c my rheaumtoglist he then decides which treatment then nurse does demo with u how to inject .when ur injection ready nurse will hide u .then u have to wait an hour in case u have a reaction .good luck x amy

[oldtimer]

It is really annoying when you are feeling awful and someone says 'You look well' . My reply is usually something along the lines of 'Isn't treatment wonderful!' or 'You can't see how I'm feeling inside!'

And if someone asks me how I am, I reply 'As well as can be expected', rather than saying the lie 'I'm fine, how are you?'

But keep on fighting and socialising even when it's difficult. It helps how you feel to get out and about.

[Amy65 in reply to oldtimer]

So true thankyou x amy

[Gnarli]

There a lot of weird people out there and they live amongst us. I haven't told many people about my RD and some reactions have made me boggle. My "favourite" was the supposedly intelligent person who asked me which I would choose, osteo or rheumatoid. What?!!! Your nurse had it right. Great big gentle hugs

J

[Amy65 in reply to Gnarli]

Lol as if we would choose to have any arthritis. Thankyou amy