Rheumy

[55MC]

I had just replied to Whitedog yesterday and my mail came. One letter for the Rheumy nurse in 3 mths and another from the consultant. I came off MRX AND SULPH in December due to how badly I was feeling and pain still there. The consultant letter was giving me an appt for 22/3/19.!! A year away!! I am furious. I have written back to her asking why no alternative was offered ? Also asking for referral to new consultant. I have only been diagnosed for two years now.

[Kai--]

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Kindly see reply to you (& Whitedog) at healthunlocked.com/nras/pos..., 55MC.

If you don’t mind, I’ll copy & paste it here:

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Whitedog & 55MC, merely supplemental considerations for you (if you’re interested). 😌 🙏

Kindly consider:

🤔 Never popping off any med without consulting with your Rheumatologist 👩‍⚕️👨‍⚕️ 1st. ( healthunlocked.com/nras/pos... , healthunlocked.com/cure-art... scroll down toward Maya video)

🤔 Lor’s experience: healthunlocked.com/nras/pos...

🤔 Possibly migrating to DHA, etc. ( healthunlocked.com/cure-art.... ) in place of Cod Liver Oil or any fish oil 🐠 ( healthunlocked.com/cure-art... ).

🤔 Lifestyle & dietary changes for you & your rheumatologist to explore/ research (only if this ‘type of thing’ seriously/ sincerely interests you) ( healthunlocked.com/nras/pos... , healthunlocked.com/nras/pos... , healthunlocked.com/cure-art... , healthunlocked.com/cure-art.... ) ’in conjunction with’ your meds (or, if all meds are failing you, ’in place of ‘ your meds) [It’s not for ‘dabblers ‘n dilettantes’ who merely wish to ‘dip a toe’ in then scream from the rafters it’s all ‘stuff ‘n nonsense’, ‘too difficult’, ‘unsustainable’, or ‘doomed to fail’, etc.. ☺️ ]

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Exactly, Whitedog, popping any kind of pill 💊 (whether ‘natural’ 🌿 or ‘pharmaceutical’ ⚗️ ) is not the easy ‘fix it’ — not a 1-spot ‘magical’ ✨ answer. 😌 🙏

Marching toward improvement/ healing is far, far more complex/ nuanced — long term, life-long.

If you’re interested, kindly consider reply to Jasonteddancer ( healthunlocked.com/nras/pos... ):

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Merely broader, longer term thoughts if interested for future, Jasonteddancer — once this difficult 2-year escalation subsides. 🙏 😌 Perhaps merely considerations to help improve home & work life over upcoming years? 🤔

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If interested, kindly see shared thoughts at:

• healthunlocked.com/nras/pos... (scroll down ⬇️ to "It is indeed daunting . . . ")

• healthunlocked.com/nras/pos... (scroll ⬇️ "Kindly see if Smitha1521’s post . . . ")

• healthunlocked.com/nras/pos... (scroll ⬇️ "Yes, some of us have & can . . . ")

• healthunlocked.com/nras/pos...

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Wishing you speedy relief & realistic hope for future long-term, long-lasting improvements, Jasonteddancer. 😌 🙏 🍀 🌺 🌞

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Yes, 55MC, if you’ve a Rheumatologist 👩‍⚕️👨‍⚕️ who’s incapable of hearing you ( healthunlocked.com/cure-art... ), it may be time to (unapologetically) find one who can truly hear 👂 you & is capable of thinking outside a narrow, restrictive box 📦 .

They (good rheums.) are out there. They do exist. 🦄 ☺️ It’s a matter of finding 🕵️‍♀️ 🔎 one who’s actually listening 👂 & actually understanding what you’re saying — and, who’s actually capable of "thinking outside the 📦 ".

[Highly advanced/ prized education 👩‍🎓, training 👨‍🏫 , honed skills 👩‍🔬 & experience 👨‍⚕️ is 1 thing — the inability to see 👁 👁 what’s before one’s eyes 👀 — to not dismiss, ‘pooh pooh’, ignore, by-pass, shunt aside, belittle, ‘turn a blind eye’ toward, etc. — is something entirely different. 😳 ]

Allow you heart 💓 , mind 🧠 , gut to guide you 🗺 on how to proceed. 🤔

Don’t derail/ undermine your own gawd-given judgment 👩‍⚖️ , your own ability to weigh evidence ⚖️ to arrive at sensible conclusions. 👍👍

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For enough of us, bodunchar ’s words ( healthunlocked.com/nras/pos... ) have rung bell-clang clear 🔔 (prophetically 🔮) true. (Merely scroll downward toward bottom of the 2-year old post, to hear the explanation that fits a few too many of us.)

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[summer32 in reply to Kai--]

Gosh Kai, you could write a novel, is this your full time job? X

[Kai-- in reply to summer32]

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😂 😂 😂

Oooops . . . ☺️ . . . sorry sorry , summer32 🙏 . . . toooo much blathering 💬💬💬 on 🤭 . . .

Merely cobbled together info trying to pass along. 🙃

Would be nice to get paid! 🤗

Kindly feel free to pass around donation plate 🍽 , bowl 🥣 , basket 🗑 . . . 😃 🙃 😁

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[summer32 in reply to Kai--]

Find you brighten the day x

[summer32 in reply to Kai--]

You brighten the day x

[55MC in reply to Kai--]

That cheered me up Kai!, I have asked to be referred to another Rheumy.

[summer32]

That's what it's like for me poor provision, Cinderella service, I have just changed consultant, by paying to see one privately, due to serious flare, I'm now on her books, with previous consultant, I could often be left 18 months, it has destroyed my health and

Career I om no effective meds other than steroids and steroid jabs at moment, NHS creaking at the seems I'm afraid!!!

[55MC in reply to summer32]

1 agree summer32 the NHS is having problems! This is the first time I have come up against it. Will see how it works out with a new consultant. Hope your health improves soon, or at least you get some relief.

[Gnarli in reply to summer32]

I can't 'like' your reply, summer32. There should be a 'sympathy' button

J

[summer32 in reply to Gnarli]

Ta yes flaring again tonight

[Gnarli in reply to summer32]

*hugs*