September 2016 diagnosed with anti-ccp positive RA. Put on methotrexate, hydroxycholquinine, sulfazalazine, leflunomide and allergic to all of them. Didn’t qualify for biologics and suddenly hey presto nothing wrong could be seen. The pain remained and was excruciating but the new diagnosis - nothing wrong despite what had been seen earlier. Good bye you’re off the clinic.
Complained and got moved to the lead consultant’s list. Great guy who’s honest and listens. Upshot MRIs and more blood tests - I am positive it seems for the genetic marker for Ankylosing Spondylitis and although they can see no obvious inflammation in my lower spine something is going on in my thoracic they just can’t see what.
Inflammation keeps coming up especially in my hands. Got occy health consultant to take photos and email my consultant as invariably it goes down when I have a clinic appointment. Today however my consultant said the photos showed it and the fact another consultant had seen it proves it.
Can he give me a definitive diagnosis - not yet as he thinks it will play itself out one way or the other. The raised anti-ccp was probably a red herring, but the genetic marker much more significant, the changes in my spine though not definitive yet plus the location of the pain such as tendinitis in the elbows and the rapid flares in my fingers all point to a more likely diagnosis of one of the psoriatic forms of arthritis. Only time will tell but there is enough of a pattern even without ultrasound showing it to suggest some sero-negative inflammatory process going on. So steroid injection today and if I respond to that it’s back on a very slow build up of sulfazalazine to go with the gabapentin.
The funny thing - last year when I did the hospital arthritis course and they went through the symptoms of the different inflammatory arthritis types I said you know I think my symptoms fit better with psoriatic arthritis rather than RA but I was told it couldn’t be as I didn’t have psoriasis but turns out you don’t have to!