Hi, glad to have found this forum! I'm having issues gaining a diagnosis. Looking back, I've experienced recurrent joint problems, tendinitis, bursitis for the past ten years. Two years ago I experienced a debilitating few months of swollen, painful joints & extreme fatigue. My old GP suspected RA as my grandfather had had. I was referred to a rheum but by that time all symptoms gone. She diagnosed me with reactive arthritis.
Fast forward...have had several recurrent flares since the first, bloods always come back normal for inflammatory markers. Except last year the Ana was 1:640. This year has seen my complement c3 drop to 17 so low, c4 is borderline low.
My rheum has called me an enigma, which is great but not helping things. I've just had a bone scan this week - they also did a CT scan. Awaiting results. Will not see rheum till April but she mentioned starting me on hydroxychloride - I'm a little nervous about taking due to wide effects but when I'm in a flare my whole life stops. I've had to cut down my business & friends have dropped off.
Symptoms move symmetrically around my body, knees permanently inflamed (US revealed entethesis). Shoulders, ribs, jaw, knuckles, wrists range from achy to sharp, knife-like pain...only when I'm having a flare though.
Does this sound like Ra? I've been told it seems like something is "brewing". Would they have done a CT scan if they had/hadn't seen anything? Can you have Ra with no inflammatory markers? Should I take the meds if no definitive diagnosis??
Thanks for any advice!