Numbness?

[cheshcat]

Does anyone else besides me have numbness?

I've been fighting with numbness off/on for the last year at least. Have had a giant list of tests. Having yet more tests but does anyone else with RA have numbness?

(Rhuematoid is my only diagnosis currently, my kidneys are getting scanned next week, not sure if they would be the cause of numbness though).

Thank you all!

[Eiram50]

You didn't say where your numbness is?

Have you mentioned this to your rhuemy? Did it begin before or after taking any meds you were prescribed?

I think for me, I'd certainly be asking more/ discussing it further with my medical team- not everything is linked to our RA after all?

Wishing you the best going forward

Marie

[cheshcat in reply to Eiram50]

It's mostly my left side. It never moves, it gets a bigger area or goes back down. I also have a spot on my left forearm that feels on fire. I stopped prednisone after taking it for 15 days (tapered down) so that's why I wondered if it was all inflammation from my RA. It's just not something I've seen discussed before (and my mom has never had numbness).

My rheumatologist told me we need to get the RA under control and basically "see what's left over".

I am calling him in the morning though because my temp is over 100 today and the numbness has been bothering me.

[Eiram50 in reply to cheshcat]

Hi cheshcat

That doesn't sound great. With such a high temp, I'd certainly be giving them a call.

Best of luck and I hope they manage to sort things out for you.

Marie

[cheshcat]

Glad I'm not the only one! Thank you.

[cheshcat]

Yeah, my rhuemy didn't seem overly concerned. I guess it's the body wide inflammation that comes from having an autoimmune disease. I am glad to hear I'm not the only one though (but sorry you are dealing with it too!!)

[AngieRowe]

Yes, feet and toes. Comes and goes .

[cheshcat in reply to AngieRowe]

Thank you! It makes me feel better I'm not the only one.

[Hidden]

I've got 6 out of 10 generally numb toes, 2 seem to be permanently so. I get numbness in my elbows and hands sometimes too. I had all this before diagnosis for RA. I find the toes troublesome as they end up in awkward positions and then hurt like merry h... when the numbness subsides. The permanently numb ones are deformed (something I detest with heart and soul) but still become painful when they get moved around the wrong way. Now and then I tape them to nearby toes, I'm not sure if I do this for fun or in desperation!

I hope you get your stuff sorted.

Susie

[cheshcat in reply to Hidden]

Did they tell you that yours was due to RA?

I guess I'm just waiting until the RA is controlled (I'm looking forward to that day!).

[Hidden in reply to cheshcat]

The rheumatologist attributed virtually everything to the RA! Rotten teeth included.

My RA isn't controlled either.

You have to do so much yourself and it's all a bit much. They tell you that you have a disease they can't fix, scan and X-Ray you so they can point out all the unbelievable damage that can't be mended and then send you off to obsess over it at home. I felt like I'd been sentenced to pain and unpleasantness for the rest of my life and for a while the only comfort I could find was that I've an increased chance of dying sooner than if I didn't have RA. The drugs swiftly made my symptoms worse and I got a load more stuff wrong too. You do have to stay positive..........whoever said it and could do it didn't have RA!

I'm wishing you a super quick remission cheshcat.

Susie.

[Daviator]

In both my hands yes.

Everywhere else just feels like I fell naked into wet stinging nettles.

Yes I tried the wet nettles and it was the same.

While waiting for your test results, I recommend comedy.

Dave

[cheshcat in reply to Daviator]

Thanks Dave

Yes! That patch on my arm, nettles!

I tried putting icy hot on it, like trick my body, no dice.

[Daviator in reply to cheshcat]

I think it's the mind you have to trick