I've been fighting with numbness off/on for the last year at least. Have had a giant list of tests. Having yet more tests but does anyone else with RA have numbness?
(Rhuematoid is my only diagnosis currently, my kidneys are getting scanned next week, not sure if they would be the cause of numbness though).
Thank you all!
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cheshcat
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It's mostly my left side. It never moves, it gets a bigger area or goes back down. I also have a spot on my left forearm that feels on fire. I stopped prednisone after taking it for 15 days (tapered down) so that's why I wondered if it was all inflammation from my RA. It's just not something I've seen discussed before (and my mom has never had numbness).
My rheumatologist told me we need to get the RA under control and basically "see what's left over".
I am calling him in the morning though because my temp is over 100 today and the numbness has been bothering me.
Yeah, my rhuemy didn't seem overly concerned. I guess it's the body wide inflammation that comes from having an autoimmune disease. I am glad to hear I'm not the only one though (but sorry you are dealing with it too!!)
Thank you! It makes me feel better I'm not the only one.
I've got 6 out of 10 generally numb toes, 2 seem to be permanently so. I get numbness in my elbows and hands sometimes too. I had all this before diagnosis for RA. I find the toes troublesome as they end up in awkward positions and then hurt like merry h... when the numbness subsides. The permanently numb ones are deformed (something I detest with heart and soul) but still become painful when they get moved around the wrong way. Now and then I tape them to nearby toes, I'm not sure if I do this for fun or in desperation!
The rheumatologist attributed virtually everything to the RA! Rotten teeth included.
My RA isn't controlled either.
You have to do so much yourself and it's all a bit much. They tell you that you have a disease they can't fix, scan and X-Ray you so they can point out all the unbelievable damage that can't be mended and then send you off to obsess over it at home. I felt like I'd been sentenced to pain and unpleasantness for the rest of my life and for a while the only comfort I could find was that I've an increased chance of dying sooner than if I didn't have RA. The drugs swiftly made my symptoms worse and I got a load more stuff wrong too. You do have to stay positive..........whoever said it and could do it didn't have RA!
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