I continue to have abscesses, respiratory infection and UTI. My GP expects me to go see him ? Why travel three hours for him to order a urine test? If last sample was contaminated why do they just not repeat the stupid test. It is all about billing. He does not get paid to order test over the phone. Are you kidding me.
Then Rheumy does not deal with infections. Seems to me without RD, these infections would not exist?
I see my Rheumy July 5th. I was to have Rituxan infusion in June. I have deferred that infusion. It has been twenty three months of drug after drug and no real improvements. I have tried no drugs and that is clearly not good. But she has yet to discuss a 'treatment plan' . I need to know where this is going. I have not had X-rays other than lungs, heart. No baseline ? The pain in my hips is simply breathtaking. If they could invent a device which transmits that pain I would truly have a superpower.
I am so tired all the time. I need to lie down from one room to the next. Sitting is PAINFUL. I need to lie down to take pressure off my spine. I am so tired of apologizing. I find myself saying sorry as often as I say Owe. I have a genetic mutation which makes me process opiates very quickly. The good news is no dependence the bad news no pain control. Being allergic to naproxen also excludes NSAIDs and I cannot take Prednisone.
What makes me angry is they 'doctors' seem to do nothing about all the other conditions like reflux, insominia, bletharitis tenovitis ..I have not seen anyone from orthopaedics either. It is like they have given up. Maybe the message is nothing can be done so I should just give up. Now I am tired enough to do just that.