At my latest Rheumy appointment I had a DAS score of 4.24 with ESR now down to 33 and CRP at 11, but this was after a week's annual leave and just resting up.
We discussed the fact that I would really like to be able to do my job (part time IT Lecturer) and still be able to go swimming or for walks with my partner on my days off (we met through our love of sport and being so fatigued and in so much pain most of the time is having a devastating affect on our relationship). We thus decided to try adding Sulphasalazine to my current prescription of 25 mg injectable methotrexate.
However, I had my fortnightly blood test (so only on the two a day, ie half the doseage that I was to work up to) and got a call from the hospital telling me to stop the sulphasalazine immediately and have another blood test next week before going back to discuss results on 11 March..... The addition of sulphasalazine made the nausea and fatigue horrendous and also brought on another flare in my shoulders, elbows and hands (not sure of the inflammatory markers from this test as the doctor was on her rounds so it was just a message via secretary) ... so my quandary is - do I just stick to Methotrexate and increase pain killers (adding ibuprofen regularly) as it has got my inflammation down to 11/33 or do I try something else? When I read some of the blogs where you have much higher CRP and ESR I wonder if I am being unrealistic in my wish to work and play a little. Feel like I have no-one to talk to as family live so far away and partner just says "its up to you" and just distances himself as it scares him to see me in pain and getting upset. I feel so confused and alone when it comes to answering "what next?"