R/A: I feel sorry for you all, I was on sulphasalasine... - NRAS

NRAS

37,263 members46,132 posts

R/A

linmar profile image
5 Replies

I feel sorry for you all, I was on sulphasalasine 17 years accompanied by diclofenac sodium. it suddenly decided not to work and I went to around 30 crp very stiff and painful. I was put on methotrexate till I reached 20 mg (8) tablets along with the sulphasalasine it didn't touch it. I was allowed to go on humira as the other two tablets were not doing it for me. After my first injection and before my second one two weeks after, I had dropped to 1.7 crp, I know, unbelievable, I have been using this pen every two weeks for around 4 years now and 4 methotrexate as it's said they work together. I have never gone above 3 crp usually 1 or 2( crp (( inflammation test I believe)). I check it after each monthly blood test. I no longer take diclofenac sodium or paracetamol. I must be in remission, I can actually jog if I wanted to, 65, so i probably won't and no fatigue. I don't know if anyone has found this doesn't agree with them, but so far so good for me. It's worth a word with you rheumatologist nurse. I've now, as all is working well, been asked if i'd mind using the pen every three weeks instead of every two. I'll give it a try and see what happens. I have plenty of bone fusing from the previous years but no pain or stiffness. I hope you all find your helpful treatment.

Written by
linmar profile image
linmar
To view profiles and participate in discussions please or .
Read more about...
5 Replies
allanah profile image
allanah

Thanks so much for telling us this , such an inspiration and gives us hope xx keep going!

Gigi71 profile image
Gigi71

I am also on Humira, 8 years it's been a great drug for my RA but now possibly together with Azathoprine is thought to be the cause of my small skin cancers, came off Azathioprine, still hanging on to Humiria, have been offered Rituxamab but was concerned on the length of time it takes to work. 10 weeks on mtx seems to be okay now, still need to sort out an eye problem. Still take all my other meds for various other problems. Pleased to hear how well you are doing.

diperriam profile image
diperriam

I am having painful neck problems and will get a MRI scan in a few weeks. I have been too afraid to take any drugs and have managed my RA fir the last 4 years through diet and injections. My right elbow is very bad but both knees have settled and apart from my neck I really feel fine. I keep active and try to forget the RA. But the blood tests show high inflammation 😪

Hessie5 profile image
Hessie5 in reply todiperriam

Hi - what injections do you do! Quiet unbelievable 4 years and no meds. If only we could get rid of the inflammation, I often wonder if it’s hormone related. Wishing you well 😊

diperriam profile image
diperriam in reply toHessie5

Sorry for the long time to send a reply. I have been away on holiday. I get cortisone injections in my left knee and my right elbow .

Today I have decided to try and stop drinking alcohol every day and I switched to decaf coffee this morning. Not sure if it will help but I would love less neck pain.

I don’t think it is hormones as I am 68 and I think every thing is pretty much settled. I feel great apart from this awful RA. Thanks for the kind wishes

Not what you're looking for?

You may also like...

C. R. P. LVLS

HOW ARE YOU MY LOVELIES, I went for blood test as I do every 6 weeks but they called me today and...
Philip profile image

Tocilizumab

Hi all, I was diagnosed with RA approximately nine years ago and started off on Methotrexate,...

What hurts less?

Until now I have been using Otrexup ( an auto inject pen of methotrexate). Due to cost, I will now...
sara1215 profile image

Rittuximab

Pleased to say I have been today for my first infusion of Rituximab.Return in two weeks for second...
Bella59 profile image

Rheumatoid Arthritis: The sun is too hot!

Hello to all of you good people. I have just joined this forum and I I hope I will be able to both...
trevo profile image

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.