Unbeknown to me i realised i am in the middle of a flare.........

[sylvi]

As you all know i have had a infusion for the pain i suffer with,which has helped me no end with my back. What it hasn't done is stop a flare and it was only after seeing the dr yesterday did i realise that i was in a flare. You see my hands hurt like they did when i was first diagnosed some 14yrs ago when i was 46+ years old. I was in tears yesterday morning and got hubby to ring my rheumy contact at the surgery and she got me an appt with my dr. He was lovely with me and checked me over and gave me some tramadol to tide me over this period (this i think was when it dawned on me) until it settled down.He did say you know we can't cure you (crashdoll Your wisshes as well as mine) i answered yes i know,but i just want to feel better than i do now as my fingers hurt and it hurts to do anything with them even though i push through the pain. I came out of the drs thinking at least he is listening to me and i wanted him to see me when i am like that.

After the drs i went to the bank to get some money to buy my hubby a birthday present. It os a second hand rotavator as he is finding it difficult to do his digging down the allotment and i have to say he was very pleased with it. His allotments are his sanctuary from my illnesses(which i make a light hearted joke about) and he needs this break and he has been a farmers son until he went into the Army and he is as happy as larry when he can go down there,but sadly now he has OA in his spine and has been finding digging his plots very painful. Now he can go and hoe the weeds out and then use his rotavator thus making life easier for him. If he is happy then i am happy apart from when i am flaring that is.

I was so very tired at 9,30m that i switched the lights out and settle down only for hubby to bring the cocoa up shortly after. Yes i haven't been able to settle since and am down here doing my colouring and wordsearch books and trying to sleep. So if anyone sees the sandman send him my way please.xxxxxx

[allanah]

Here with awful back/. Hip/ hand wrist pain too . Doh ! Came downstairs do not to disturb hubby and thinking " I'm quite sick to death of this!"

I'm sure it will seem better in the morning . Hugs xx

[sylvi in reply to allanah]

The same to you sweetie.xxxxx

[Someonesmother]

Well I hope you get some relief from the tramadol. I use that too.

Your hubby must have been so happy with his present. Was it a surprise?

[sylvi in reply to Someonesmother]

Yes and no if you know what i mean,it was mentioned when he said the digging made his back bad. Then i went onto some sale sites in my area and someone was selling one,so yesterday when i went to the drs i also called into the bank and raided my isa . It cost me £120, but it was well worth it in my mind if it helps my hubby. He does so much for me and it is a small price to pay if it makes his life easier as he does everything for me darling. It is a good quality one as well which i am happy about and i believe he is going down the allotment and he is taking it with him to try it out. It is so very light so it will stay in the garage as things have a habit of going missing down the allotment especially rotavator and lawnmowers.xxxxx

[Someonesmother in reply to sylvi]

What a lovely surprise.

[gwynedd]

Oh Sy!vi,

You've had it so hard lately, and I sometimes think that not being able to sleep is worse than the disease, it can feel like torture.

I listen to radio 4 drama's on iPlayer to get me off. It's like having a bedtime story from your mom, some nights I'm asleep after the first 10 mins. I listen with my headphones so I don't disturb my hubby. I bet your hubby was made up with such a thoughtful pressie 😀 ,sounds like he's lead a very full and active life and using extra equipment will make it possible for him to continue. I hope your asleep now and managing to rest. Xxx

[sylvi in reply to gwynedd]

I have dozed all night so not much good sleep,but hopefully tonight i will sleep. Hubby is a very active man,he has two plots down the allotment and then he he does all the housework as i can't do much these days.xxxxx

[craigsif]

hi beautiful I am so sorry you are feeling a bit beat up,when you mentioned a rotovator for hubby. I was wondering if you had recently updated your insurance lol.

It always amazes me that we shout about a revolutionary way we're beating the big c, wear pink and be proud. there is no disrespect in this as my friends far and wide have fallen to that.

But you know sometimes I think why can't we plough the same amount of money into our problems, it does kill albeit not in the same way and frequency. But it takes away life,family,enjoyment in bits and bobs in the most insidious way possible yet if you say to someone oh Ive got RA,PsA, MS the standard reply is oh that treatable isn't it.!! eh truth is yes but unlike some disease not curable. when this happened to me, my Doctor said Craig this wont kill as such, But you must make some life changes, i didn't know it would include having to deal with all the problems and have very little answers .

I do hope you are feeling somewhat better sending you gentle hugs, I let your hubby do that lol.

warmest Craig

[sylvi in reply to craigsif]

Oh Craig you have echoed words i have been saying for a long while and with cancer you either get well or die (i am not saying that in a flipant way,but it is true) what we have will only get worse and icapacitate us even more and your right there is no known cure for it. I have pushed myself again in an attempt to help hubby and i just hope i don't pay for it later. What regiment were you in by the way.xxxxx

[Hidden in reply to craigsif]

Hi Craig - I've wondered the same thing, but I guess there are a couple of answers: the pharmaceutical companies are making lots of money on our drugs, and there are not that many of us percentage wise fighting this. People that don't know much about it assume that it is arthritis as you know, and have no clue that it is that bad.

[craigsif]

er I have 5 service numbers ! including the french lol xx

[sylvi in reply to craigsif]

My hubby was in the 2nd battlion Royal Regiment of Fusiliers. Now disbanded.xx

[Crusee]

Sylvi.

I just can't believe you are in the wars again!

When you said you had the infusions for your back pain I thought things might be taking a turn in the right direction for you at last but obviously not.

Well let's just hope this flare passes soon.

Sounds like hubby is well chuffed with his pressie and that was a lovely thought,it will give him hours of pleasure and make life easier for him in the allotment.

So, until flare passes stay put,feet up and stick with the colouring and word search.

Take care.

Crusee

XX

[sylvi in reply to Crusee]

DArling rheumatology rang this lunchtime to say i have an appt tomorrow at 9.30am to see the consultant about my hands.. So we will see what he has to say darling.xxxxx

[michaelegan]

Don't drink anything with caffeine in it if you want to sleep. Always opt for decaf if you have sleep problems

[sylvi in reply to michaelegan]

I have cocoa at bedtime to help me sleep .xxxx

[Hidden]

Hi sylvi - Boy this sounds familiar - I went to the ER twice with flares because I didn't know what they were.. Now I at least recognize them about the 2nd or 3rd day (I'm part of the slow class I guess - ha ha). Your issue was clouded with the pain from your back so it makes sense it was hidden.. I hope you are feeling better soon

[michaelegan]

Don't have anything with caffeine in it if you have problems sleeping or getting to sleep. Always opt for decaf.

Egan

[Em13]

Hope you are soon feeling better, Sylvi.

I hope you manage to sleep tonight. Lack of sleep makes everything else even harder to cope with.

[sylvi in reply to Em13]

Yes it does Em,and i am down here again.xxxx

[KSee]

Dear Sylvi I'm sorry you're in pain, sending you a big gentle hug 🤗. You and hubby are such a loving couple 😍😍 xxx