Hi all, I'm symptom free, it's taken almost three years and I want to share how amazing it is because I believe positivity in other ppl's posts was the biggest help when I was in the darkest place with pain. I hope my words help one person in their time of need. Because there really is light at the end of the horrible tunnel of Inflammatory Arthritis and I feel so much gratitude!
This disease crippled me, literally I couldn't walk, I stopped exercising for two years. I used disability aids for eating, using pens, texting, wore wrist and ankle supports, lost hair, the list goes on. It takes so much away from us (my 'it' is now Psoriatic Arthritis).
I started Humira 4 months ago, before that I believed that this was the golden ticket, the answer to everything. And boy I was right.
The waiting for Humira to be delivered was like anticipating my life arriving again in a box. I remember saying I know Humira will work, everyone at the biologics clinic looked so......well, so normal. I injected Humira on Mother's Day in the morning and within two hours I was walking more normally, I wanted to cry with joy. By the end of the day I had my feet flat on the floor walking something I haven't done for years. It was beyond anything I could hope for. I was mobile again. The next morning felt like Christmas morning. I couldn't wait to leap out of bed and try out my new body 😂 Each hour that passed in that first week I felt the pain melting away. It was only when pain started going that I realised how much everywhere had hurt!
The brain fog lifted, the fatigue melted away, I was becoming me again!
Amazing moments that happened in the first few weeks:
Waking up and actually feeling like getting out of bed 🛌
Feeling the texture of floors, I forgot how great carpet, silky rugs, wood floors, GRASS feel minus pain.
Being able to have a conversation without the background 'noise' of pain.
Eating with regular cutlery
Eating without pain
Ability to exercise again (I got a road bike and I cycle to work)
My sex life 👏🏼
I can honestly say that even today as I went through London on the tube and watched everyone rush I felt so unbelieveably happy and blessed to just be there, pain free, mobile and in HEELS. I wondered if the rushers know how blessed they are. I know I am.
Yes I have had moments where the disease beat me, I wanted to switch the pain off. I couldn't go on anymore if I had to live like this. I couldn't see the future beaches a future of pain and fatigue wasn't a future for me at all. Humira has given me my life back and I intend to live it!💃🏼
I really hope all of our newcomers find treatment that works for them and get there life back ASAP and I hope all the veterans of NRAS forums know how much they help everyone ❤️
Life really is a wonder to me right now, how I took it for granted before. I really won't be again!
PS I learnt to surf in cornwall this weekend #bucketlist #arthritiswhatarthritis