Humira started, Sulfasalazine ended, still on mtx inj

[nablur]

Hi all

I started Humira yesterday after along and lovely visit with my Rheumatologist. Quite the Sulfasalazine. Still doing the mtx injections once a week.

I did volunteer this morning and felt fairly ok. But since I got home at noon I was in awful pain and though I’ve laid about most of the afternoon I’m feeling very shaky, somewhat nauseous and so tired. Is this the Humira?

Everything is pretty swollen, hence the add-on.

And why does that injection of Humira HURT so much?

I’m wondering if this reaction is “normal” or if I need to call them. Any thoughts Welcome...

Thanks.

The pic is from my women’s retreat weekend last weekend. Beautiful, and very smoky.....

[sylvi]

My rheumy has just taken me off sulpha and hydroxy and he is going to put me on baricitinib,no i haven't heard of it either. I had to have a x-ray and a load of bloods done and i go back in a month to get the drug. He was of the opinion that the drugs weren't working after seeing the ultrasound on my hands. I find that if i am going to do anything i have to do it in the morning as i am cream crackered after lunch.xxxxx

[popsmith1874]

Hopefully things will settle down I'm on same combination 20mgs Methetrexate and doing well long may it continue xxx

[nablur in reply to popsmith1874]

Thank you Popsmith! ❤️

[ruth_p]

Beautiful picture!

I used to find the Humira injection would sting quite badly, the rheumatology nurse said this is normal. I would say make sure you leave it out of the fridge for at least 45 minutes before injecting so it is at room temperature first. I would guess the fatigue is from uncontrolled RA which I assume is why they have started you on the Humira. Also if you have stopped the sulfa already and the Humira isn’t working yet (it can take up to 12 weeks to work) then the RA will become more active. Give the medication time to work and pace yourself. 🙂

[nablur in reply to ruth_p]

Thank you. That makes sense. ❤️ Have any of you had bad reactions due to compromised immune systems?

[ruth_p in reply to nablur]

I haven’t been on Humira for 4 years. I take tocilizumab, which targets the IL6 protein rather than being Anti-TNF, and mtx. I work with 4-5 year olds so I tend to catch everything they have! Strangely while I’ve been off work recovering from my hip replacement I haven’t been ill at all 🤪

[Gigi71]

Hi Nablur. I have been on Humira for 10 years and also had mtx added 2 years ago, replacing Azathoprine. I preferred my old combination. I always where possible have a quiet day after taking it. Drink lots of water too. When they took the additive out of Humira that caused the sting about 2 years ago I could do them myself, the nurses at my GP's surgery were happy to do them for me. All the best. X

[nablur in reply to Gigi71]

Thank you Gigi ❤️