I have been diagnosed with fibromyalgia in 2004 and about a year ago I started to develop other symptoms that are far more intense than the symptoms associated with fibromyalgia. It includes pain in the whole body , sharp burning pain tha can effect either side of my body and sometimes the whole body from the top of my head all the way to my feet and other times it can effect just quadrants and halved. It tends to be located in a specific part of my body for a few days before it switches to other places. I also feel tightness in my joints that feels like my skin is rigid and it is painful to make movements like closing my hands and sometimes from the middle of my feet to my toes gets yellowish, cold and I lose all the sensation on them. I has worsened in the last 2 years and now I can only get out from bed with ibuprofen. When i move around more the burning sensation gets more intense and it least longer to disappear. The only thing that helps is if I lay down . I also have some kind of vibration sensation that goes from my back down to my feet especially when I am laying down and it intensifies when I move around more. In a x-Ray it was diagnosticate that my right kidney is smaller than the left side.
I have I long history of migraine and headache that have worsened in the last 2 years. I am having difficulty to walk as each time I stand up my foot hurts and I get a sharp pain on my head. And if I tend to walk it turns to a migraine. I also have been diagnosed with /Raynaud'sphenomenon.
During my neurological examination the doctor found I have 4/5 weakness of shoulder abduction bilaterally. Reflexes were briskish but not pathological and sensation was objective normal but subjective reduced in the right hand with sparing of the median aspects of the hand (not sure what that means). The reflexes were very brisk at the knees and at the ankles and the plantars were both mute. I have done EMG, IMR exams last week. And I did a lot of blood test including all tests related to autoimmune diseases.I have got my results and apparently the only concern is my c reactive protein that is elevate ,range 0 to 4 mine is at 9 mg/l.
Good news! (I hope)
After a long wait i got to see a doctor who put all the peaces of my symptoms and exams together and come out with a plausible idea of what I have.
Yesterday i had an appointment with pain management clinic at sant Thomas hospital in London. The doctor was greater, she took the time to look thought all my exams and reports from the other specialists that I went and finally explained the meaning of each of them to me. The apine scan that I did in December 2014 was reveles to me and as i was not awere of its content i was not able to understand my symptoms. The doctor from the pain clinic told me I have mild stenosis and most of the stabbing pain on my leg and food and loss of sensation in my foot is caused by it. She told me I also have peripheral neupathy in most part of my body. She referred my to a rheumatologist and told me to increase my anticonvulsant to the maximum dose and if it does not work she will replace it for another anticonvulsant. I will be taking part of a in-house program in which I will be staying in the hospital for four weeks with a group of 10 people. We will be having a 'course' to understand out pain and make the best in life of what we have. We will be accompanied by a physiotherapist, occupational therapist. Psychologist, nurse and doctors during the 4 weeks of the program.
So I guess I want to know if the peripheral neupathy might be caused by a rheumatic illness.
Ps: I started this campaign if any of will agree with what I am saying and want to sign the petition it would be great. If you want to add any different thoughts and ways to improve it I will appreciate.