I have for the last couple of months had breathing problems which I, and others, have blamed my Bronchiectasis for. This has now been ruled out and further investigations are going to be carried out in the near future on my heart. I'm finding this a bit worrying, to put it mildly!
There is a history of heart disease on both sides of my family. My 87 year old mother has been in hear failure for many years now so I'm witnessing the process on a daily basis which isn't always pleasant or helpful, believe me.
Anyhow I did what I always tell others NOT to do when in a similar situation.....I looked up the link between RD and heart problems, particularly in women, up on the Internet......my brain is wizzing with all sorts of information gleaned from Americian health sites that are enough to make sure I never have a good nights sleep ever again!!!! My granddaughter Gemma, the wee girl I never had, has threatened to take my iPad away from me if I attempt to do that again......wise wee girl.....
So it's over to NRSA and to all you who are a wealth of information, experience and saged advice. Help me out here please. I want to know of your experiences. I'm thinking though that I might be a bit premature in asking for this as nothing has actually been confirmed ....but.....id rather be prepared. I'm thinking back to the day I was told I had RD......I just sort of shrugged my shoulders and asked what next. I should tell you that at the time I was with a man who had a Harley Davidson and he and I were away all over Ireland every week-end camping, drinking, dancing and just generally have the time of our lives......I had no idea what was in front of me as I presented with a sore thumb and lose of strenght in my hands......within a year the man was gone and so was the Harley and with them, so was my life if I'm honest......but I've come to terms with all that and have a much reduced social life but I have adapted and excepted and this has brought me peace of mind......I still have my moments though where I look back at what I had and lost. But I'm still alive, pain free at present and still enjoy what we Irish call the 'craic'.... so I'm not ready for a shroud just yet.
I am to have a series of investigative tests done in the very near future, heart echo, stress test etc, etc. I have also been diagnoised with an increased BP and am getting a BP monitor on the 23rd of this month......breathing problems persist along with dizziness, chronic fatigue, all sorts of 'noises' coming from the heart area (I've had these for some time but didn't even mention them as I thought they happened to everyone....I know, I can't explain it either but there you are!) I've reached the point where I have noticed that if I sit and do nothing I have no sympthoms.....not great sure it's not?
I hate having to do this as ignoring the sympthoms I told you about above as I'm in really grand form as my RD is in such control. I've been through all the DMARDS and Four Bio's and am now on a very small dose of Pred, 5mg and am just great. Well the Pred will need to be increased soon but my GP said he isn't going to do anything until all investigations are completed.....otherwise I'm grand!
Isn't it strange how when the auld RD is under control your whole well being improves? Improves to the extent that I couldn't see, or ignored, other signals that something else might be going on. RD and all its components have taken over every aspect of my life for the last 5/6 years now......when it was in control all the world was a wonderful place and visa versa, I'm I on my own with that thinking? Somehow I doubt it! Something for all of you to be aware of too me thinks.
My posts seem to go on for ever don't they? I think it comes from living on my own and only having two dogs to talk to for most of the day. You should see the way they sit motionless in front of me, eyes all a glow, taking in every word I say......I just sit and gibberish away to them until they realise that I'm not about to give each of the a ham bone and they go back to their preferred places to sleep, the sofa looking out the window for Barney and my bed looking out the window for Kells......poor wee things living with their crazy mum!
Anyhow, that's it, the end of another Episole......I do hope you are all as well as you can be and that you will take a minute and help me in my hour of need......Don't mean to be so dramatic! XXXX