Sorry not been on here for a while. As you may remember, I started on Abatacept mid January 2017 and it was a wonder drug in terms of my RD. I was back to being the me prior to RD. Sadly, after the 14th subcut injection I started having side effects - migraines, dull aches on either side of my heart and intermittent pain in my right leg and arm. On the advice of my Rheumy nurse I stopped injecting (the last injection was at the end of April 2017). I have continued to get weekly migraines since stopping, some mild, some very severe. I also noticed my heart rate had jumped to 96 beats/minute! No one (medics) seems to have picked up on this! I keep getting told 'up to 100 is a normal resting heart rate!
My RD is in remission but my consultant wants me to restart Abatacept once a fortnight. I just wondered if anyone else had experienced these side effects and what they have done about it or any advice they have been given.
Hope you are all keeping well. Big hugs x