My mum has had Hughes syndrome from birth coupled by rheumatoid arthritis from 20 years ago.
She is due to have surgery in a couple of months for a total knee replacement.
If there is anyone out there in a similar position or that has had a similar operation , please inbox comment or drop me an email at mariadaniella@hotmail.co.uk.
She is only 48 and ia curious about peoples experiences
Thank you .
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mariadaniella94
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Hi Mariadaniella- I have had RA for 11 years and am on Enbrel. I had a total Knee replacement last Monday . I was in hospital for 3 nights and am now at home and walking with crutches. I was advised to come off my medication for 2 weeks prior to the surgery and will stay off it until my wound has completely healed (4 to 6 weeks). I feel fine and am managing the pain well with co-codamol. I'm not aware of Hughes syndrome. Wish your mother good luck and I hope the surgery goes well.
My sister (also with RA) has had two knee replacements. She was very keen that she did lots of strengthening muscle exercises before and afterwards as her daughter, a physio, had impressed on her how much difference this made to people's progress and return to full function. She now walks better than I do despite being five years older and is very pleased with the results.
Morning.. Yes I have had RA and Fibromyalgia for about 4 years and was diagnosed with Hughes Syndrome in August.You are the only one I have found who has both.It seems to be very rare to have both.
I hope I never have to have any joints replaced but wish your mother well
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