Injection pens: Is anyone else have problems with... - NRAS

NRAS

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Injection pens

15 Replies

Is anyone else have problems with injection pens? I keep getting ones that jam and won't inject. It's not my hands because my daughter as done it for me and two as jammed on her in the last few weeks. I've never been bothered about injections with the syringe but these are causing me to have a fear of injecting

15 Replies
angel-delight profile image
angel-delight

Hi, yes I have had problems with some of the pens for Enbrel. I thought it was my hands. I don't have a lot of strength in my hands, fingers. My sister said some of needles become bent when removing the cap. Hope this helps.

in reply to angel-delight

Hi,thanks for the reply.i start embrel this week so that's going to be two pens. Think I will have a word with hospital. I much rather the old type syringe

helixhelix profile image
helixhelix

I've not had real problems with them, and now I'm used to them I do actually prefer them to the syringes. I didn't think I would, but was told there was no choice as the syringes would no longer be produced. But I have found that I have to be very careful taking off the cap. To start with I found it nearly impossible to get them off, let alone straight, but it's ok now, as long as I don't yank but do it gently.

Hi

I use the pen for my methotrexate. I've not had any problems so far.

Have you contacted your provider?

The pens themselves are often to blame. I think that the defect happens more than anyone wants to admit. You should contact the pharmacy first to see if they can help you. Usually they can't though because the drugs are too expensive to mess with so they want you to deal with the drug company itself. If you do call the number listed on the website, they will replace the drug as long as you send the full pen back to them as is.. they will instruct you how to do this. A new one will be there as fast as you get the defective one back to them. It will usually come by delivery truck to you. IT's a pain in the butt but it's necessary for them to get that drug back first.

Thank you everyone for replying. Strangely enough health care at home phoned today about my next delivery and I told her about the problem,she said if I tell my doctor or rheumatology they can change my prescription back to the old type syringe but it's a different supplyer. That's for the methertrexate but I think the biologics only comes in the pen

angel-delight profile image
angel-delight

Hi,

My sister is diabetic and she has the occasional problem with her pens, so I think it is a general problem with various pens.

in reply to angel-delight

I really don't like them,I go to the hospital on Friday about my biologics so will mention it to them and see if they can help me over the phobia it's causing me x

angel-delight profile image
angel-delight

Hi, I do understand how you feel about injections as I have been to the hospital today for an epidural in my spine. To be able to have the epidurals I have to stop warfarin and use 3 claxane injections over a 3 day period. I have had 2 blood clots, no-one can tell me why? But I am now on warfarin for life. I need the epidurals because I have a prolapsed disc. Today the specialist told me that when he was looking at the x-ray he could see that the bulge had almost disappeared and felt that I will no longer need to have surgery. I have an appointment with the surgeon next month so I will confirm with him. He did want to operate and then later stated he didn't because he couldn't g/tee if I would end up paralyzed and in a wheelchair for the rest of my life. I didn't want to go through an operation anyway so I am very happy about todays result. The epidural usually lasts for at least 6 months and would rather go through that, even having to give myself the 5 injections of claxane. I prefer the injections to the pens. I did find the pens worked better in my legs than in my tummy.

I hope you will get the help you need and that Enbrel works for you.

in reply to angel-delight

Oh my goodness you are having a bad time of it. Is all that down to rheumatoid? They always say there is someone worse of than yourself and ive just met you.hope you start feeling better soon. I've had it 14 years now and do struggle to cope and don't feel I get any relief from the meds,even the steroids don't work at the min even though I am going to try get one in my shoulder this week x

angel-delight profile image
angel-delight in reply to

Hi, I am feeling a lot better this morning, having the epidural doesn't hurt and give me at least 6 months where I can get about with a lot less pain. I just need to get my meds sorted for RA. From the feedback I have received I feel very positive. Your right, there is always someone a lot worse off than our-self. I have a sister who was born disabled and I always think of her if I start to feel sorry for myself as she has suffered all her life. You yourself look very young to be suffering as you do. I am now at retirement age and have had to stop working, previous to that up to a couple of years ago I didn't think I would have to stop working, I do consider myself lucky.

Take care, I hope you will start to feel better and good luck with the pens. x

in reply to angel-delight

Aw thank you and hope you get some relief too. Everyone thinks I'm younger than I am but I will be 50 this year

angel-delight profile image
angel-delight in reply to

Hi I am really starting to feel better, that is my back, I should say. You certainly do look very young going by your picture. I will be 67 this year and hoped to work until I was 70. If the Toci infusion works out well and my RA/RD pain comes under control, I am hoping to go back to work, at least a couple of days a week. It would have to be light work nothing physical that could cause problems with my back.

Wishing you well, I hope they manage to sort out the pens for you. The type my sister uses are completely different as she is diabetic and has to put the dose in herself depending on the blood test.

Take care. x

Beverley-NRAS profile image
Beverley-NRAS

Hi HBJ65

is it the methotrexate metoject pen that you are particularly having problems with or others as well?. We had a meeting with a representative from Medac who make the metoject pen last week. You do have to be careful when removing the cap. You have to pull it straight down and not twist it. If you need more information please feel free to give us a call:

0800 298 7650 Monday - Friday 9.30am - 4.30pm

Regards

Beverley (NRAS Helpline)

in reply to Beverley-NRAS

Hi,yes it's the metoject.the lids are quite hard for me to get off as I have very stiff fingers that don't bend and have little grip. I will try what you say on my next injection. Thank you

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