Been going through a very bad flare again, had to increase steroids to 20mg daily (after 1 year on these), on oramporph, fentanyl pain patch 25mcg and my co-codamol. Well am off to rheumy appointment tomorrow to discuss another biologic as HUMIRA did nothing for me. Can't take methotrexate, sulphasalazine or hydro - been there and done that, either had reaction or just caused other problems.
So what next?????????????? at my last appointment they agreed to continue for another 10 weeks with Humira but after 4 we discussed that I stop as the over all 20 weeks had done nothing, advised me that they could try 3 other biologics, so lets see what they suggest next.
Cannot continue as I am, I am in so much pain, got ulcers on my fingers, cold sores, unregulated sleep and driving myself nuts with pain and stiffness.
Why does everything take so long? this is my 3rd year now with ra and I am just getting progressively worse .....................
Coz of the steroids my stomach is playing up now too, so going for the camera down on Thursday : (
have had it done before but this time im going for sedation.... all the way.................
That's me done, thank you to those of you who have read this and replied.
Love, luck and angel wings with tonnes of paitence is whats needed right now.
Oh and dont forget to SMILE AND WAVE!!!