I was diagnosed three and a half years ago, in that time I have been prescribed at different times MTX, hydroxychloroquine, Leflunomide, Prednisolone, Steroid injections, Humira and Infliximab. Also in that time I have deteriorated steadily whatever was given to me. When I was diagnosed I had occasional sore swollen feet and occasional knee pain as well as dryness in my eyes and mouth and slight fatigue. Since then the pain and swelling has worked it's way into all my joints, I sleep nearly all the time. 18 months ago I lost my job but by that time I was reduced to minimal hours and not coping any more. I haven't been well enough to work since. Up to 2 years ago I was still doing 4 hours walks up on the moors, a year ago I was still doing 1 hour walks. I now have to walk with a stick even round the house (as of 3 months ago) and use a mobility scooter to get into town. The amount of painkillers I need to take has steadily increased too. I spend all day every day alone staring at the walls or sleeping, I have no life at all. I don't get flares, the pain is constant, every day.
Is this a normal course for the disease? Every time I see a rheumatologist I tell them my knees are getting worse and they don't take any notice, no x rays or scans or even a word about it, so am I just supposed to accept it is what will happen and there is nothing anyone can do? I thought being diagnosed early, which I was, was supposed to help halt the course of the disease. If it carries on like it is I will be in a wheelchair within a year. Nothing I take works, I just get bad side effects and none of the benefits.