Having had RA for 17yrs one of the most frustrating and annoying things about it ( apart from the obvious!) is getting other people to understand it too. Even family members found it difficult to accept and understand, if I had a few good days they would somehow think I was getting better and it had gone away! If only that were true.
Like a bad bout of flu I was now recovering. I would go out on my crutches one day and perhaps a few days later wouldn't have them. But you were ok the other day they would say. Ahhhh!!
Eventually I gave up trying to explain and even now if anyone ask's "how are you" I just smile and say I'm ok thanks.
My hubby of course understands totally as he is the one who's been through the RA with me every hospital stay every operation all the good and bad days and to me that's whats important now.
If however you are having trouble getting a loved one or another family member to understand your RA my advice would be to take them with you when you see the consultant or nurse and they will explain in more detail.
I had to do that with a certain member of my family and from that point everything changed and that was about ten years ago. They have since said that I am a martyr to my RA!
It's not worth worrying about what other people think of you, unless they have RA they will never ever understand.
I would never wish RA onto anyone but just sometimes you get those people you just can't get through to and I often think oh I wish you could have it for a day then you would realize what its like! ( I know that's awful)
This is where I have been so grateful for this site, talking to people on here who know exactly how I feel is such a relief, I don't feel so alone. When someone else writes a blogg and I read it I think wow your so right and I thought that was just me.
I have seldom talked about my RA to anyone, I sometimes think they are only asking to be polite they don't really want to know how I am feeling. Some people are just so difficult to get through to, so now I don't waste my time and energy on them. They simply aren't worth it!!