Couldnt wait so I called the Rheumy secretary who was wonderful and very very helpful. She typed the letter out last night and read it to me.
There are three unusual auto immune disorders he is searching for all have eyeproblems, skin lumps, severe joint pains and limited mobility and show initially as RA!!!
I wont worry with the names and "labels "till they are proved one way or another, but i am seeing a plastic surgeon soon to assess my hands ( yeah!!!) and sort out biopsy if they still think its needed.
I can now relax as I realisze he is taking me seriously and I am so settled now. Just so glad i called his secretary as for the first time the hospital helpline let me down.
Love A xx