Another 2 sleep nights: I got a call and was cancelled... - NRAS

NRAS
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Another 2 sleep nights

I got a call and was cancelled.

However after me bursting into tears as I was so tired and hurting hubby called my consultant's secretary and I have been put in for Thursday morning.

So a crap start to the day but light at the end of the tunnel.

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Unbelievable!!!! Another example of having to be on the brink to get seen. I was a shamed of my tears the other day but if I hadn’t cried I honestly don’t think I would have got any help .... will cry again if it’s the only way . I bet Thursday feels along way off

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Oh it did, hubby was having to cope with my hiccup tears as I was trying to rant whilst crying. Not a pretty sight, me thinks but he was a star just picked up phone called them back and went no way are you doing this to her.

So Thursday it is. We went for a drive to get out and about and just take in lots of air and me trying to do some disco car dancing. I do a FAB new RA disco dance now. xx

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😂😂😂good to laugh

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Good for your hubby. Excellent. Thursday will soon be here.

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Looking forward to you uploading a vide/pics of your RA disco dance..... when you're feeling a bit better! x

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I will aim to do when I am not ranting or flaring!

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Can he go with you on Thursday.... or someone else because it’s less daunting then and less likely to be fobbed off with mediocre treatment.... sad but true!

All the best

Ali

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Yes he is coming with me all planned and sorted for it. x

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...and don't take any nonsense from anyone on Thursday...its your appointment...

Write your questions down and take them with you, read from the paper

My partner comes to every appointment, is your husband going with you?

He writes everything that is said down in my big orange note book , he makes an art out of it, and asks for clarification....are you saying ? Can you explain what you mean ? What are the options? Can you repeat that ?

I've found get better care since adopting this approach.

Do let us know how you get on.

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I’m intimidated just reading this 🤣😂🤣😂

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Not intended to intimidate, just to let whoever know...no nonsense accepted...one benefit about having a healthy disregard for authority is that it removes power struggles. We are all equal.....oh and I pay the Drs salary via my taxes.

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I have actually copied and pasted this response to hubby so he can read it and make his notes too based on your ideas.

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We are always very polite, and thank the Dr for seeing me.

I then start the appointment by asking "would you like me to tell you how my health has been since I last saw you?"

If this is your first appointment that won't work 😉. Be brief, but precise, just saying you are unwell isn't helpful for the Dr.

You should have bloods, possibly xrays done and scans arranged. If not I suggest you ask why not.

Another thing we ask...is how do you know that ?

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Good.... he is definitely a gem!!

Maybe write down any questions and information you wish to include in the appointment as things can get forgotten in the moment!

Ali

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You’ll get there, don’t you worry 😌

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Oh no! ☹️ good on your husband though 👍

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You are so fortunate to have him.mine would have told me to buck up! 😠

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