Went with daughter and family on med cruise.She felt really unwell before we went and we upped her steroids. We hoped that this and her anakinra and methatrexate injections would sort her out. Unfortunately the hospital didn't inform us that she had a strep throat before we went.daughter went into a complete flare. Just informed by them on return she should have antibiotics...got them today
Could cry that her holiday was painful.even pushed around Rome in wheelchair to get her to Trevi fountain .
I can't help feeling mad! She is only 19 and this disease is ruling her life!
Sorry to be so negative but its hard to stay upbeat...has any one else had this kind of infection and any tips how to cope with it ? :/