I am new here so bear with me HAS ANYONE ELSE HAD THE STRANGE ONSET SYMPTOMS LIKE THIS? I was diagnosed with RA 5 yrs ago not with joint pain or the normal things you think about with RA. I was nauseated then had projectile vomiting come on very abruptly. Along with that one 2 occasions it hurt bad to walk (legs didn't want to work) and needed assistance. 3rd time it happened I projectile vomited again and sat down on potty. THIS TIME I COULD NOT STAND UP. The muscles in my legs didn't work, as if paralyzed. I had to finally slide off and scoot with arms only with a towel I pulled down. I scored to the bedroom, which was no easy task. I tried different way to get up FOR 4 LONG SCARY HOURS, I couldn't do it. Without going into any trivial details I slapped my phone off the bedside with a towel table and called a friend who had a key to my house. When she got here she couldn't believe what had happened to but the fun began trying to get me somewhere else. A 6" stool was first by putting her back to mine once there then with my arms helped her get me on a chair with wheels. She had to push me, no I couldn't even push backwards myself, to the couch. She begged me to let her take me to ER but I had been before wth dx of reflux and maybe fibromyalgia. So I convinced her that'd I'd go next day if I couldn't walk. She gave me my RX to sleep and a pain and left with my insistence. The next day I could "scoot my feet" but that was a far cry from the floor. I went to rhuotologist he ran labs and oh my 😱. Now I am just learning about these numbers and letters my CRP was 265, normal is 0 - 5 and RA numbers were very elevated. The CRP that high meaning infection or inflammation he sent me for an ultrasound of my abdomen which came back negative.
So from there I was diagnosed with RA. Ask him why RA? He said my numbers were elevated but you have a little swelling and I said where? My ankle Of what I thought was "fat" even though I'm not a happy person.
So was put on plaqunil for 2 years, purple bruised my arms very badly, Tried MTX, methotrexate, pills made me sick so back on plaqunil but the pain finally started and got bad in toes. First time for pain in a joint probably two years into this after floor incident. So because of my toes started I MTX injections 1 x weekly I'm still on that but my feet are hurting worse. I ask my internist what would happen if I didn't take any medicine for RA as I hurt anyway. He said they would be hurting a lot more and the swelling would be worse. The meds slow the progression down. Now on my toes I can see damage done just in the last year
QUESTION: So a biologic I think is next, which ones have you tried or worked best for you? Just heard such negative things from people getting cancer on Humira, I know 2 myself and how they lower your immune system and are more susceptible to diseases: viruses. Does anyone have any suggestions one over the other? What do the infusions do? I would like some feedback on this as I just iced my toes elevator them and they're really starting to cause me problems. I have painful bunions when they swell and knuckles on both pointing fingers too. Thank you. I'd like to on onset if you'd heard of anything so strange? I heard RA can effect the muscles, I guess that's true.