My niece has Stills has is struggling finding support

[Joang]

I find the support group for RA very helpful and just wondered if anyone on here has Stills. My niece had a bad flare up brought on by Covid (she was double vaccinated). She has just moved to the area and is struggling to get our local Rheumatology department to help. She is the only case they have of Stills. Any support would be appreciated so that I could get her to join the site . Thank you

[oldtimer]

NRAS has a lot of support specifically aimed at people with Juvenile Inflammatory Arthritis (JIA). If you contact them (or get your niece to contact them) they will help loads.

[Joang in reply to oldtimer]

Thank you, she is an adult 48 year old and the local Rheumatology Department is at a loss what to do for her, telling her they have only seen one case before. Scary time , thank you for your advice

[happytulip]

There is a member on Lupus UK who has Stills disease who posts alot and is a good support.

[Joang in reply to happytulip]

Thank you so much

[happytulip in reply to Joang]

I've spoken to her via PM and with her permission can pass on details. He user name is stillsdisease and would be very happy to be of any help.

[Joang in reply to happytulip]

Thank you so much I'm just going into hospital for a few days so it may be next week when I contact her

[happytulip in reply to Joang]

Good luck

[Hidden in reply to Joang]

Stills Disease, happy to help?

[splash1]

My husband was diagnosed with stills 2 years ago he twisted his knee last weekend and he took his methotrexate Friday night and it had swollen up the hospital have said that is stills attacking his injury they believe, I feel that we are learning about it as we go along! He was told that methotrexate makes COVID worse and not to take it if you have Covid

[Joang in reply to splash1]

😪hoping it improves soon