Experiences with Anakinra | HealthUnlocked

12 public posts

Pericarditis and Myocarditis Treatment

Hi everyone, I was wondering if anyone suffering specifically with Pericarditis and/or Myocarditis has ever been prescribed either Azathioprine or Anakinra and if you have did it cure your condition? ThanksHi everyone, I was wondering if anyone suffering specifically with Pericarditis and/or Myocarditis has ever been prescribed either Azathioprine or Anakinra and if you have did it cure your condition? Thanks

v42230in British Heart Foundation

AOSD - Read what it did to my wife

My wife was immediately put on Anakinra otherwise known as Kineret which is an IR1 blockade. The next part of the story can only be described as a miracle. Within 72 hours her rash had gone and her whole body peeled its skin like a snake.My wife was immediately put on Anakinra otherwise known as Kineret which is an IR1 blockade. The next part of the story can only be described as a miracle. Within 72 hours her rash had gone and her whole body peeled its skin like a snake.

Anyone on anakinra would like some advice please also going for pip assessment today

Look forward to any advice about pip or anakinra Hope you all have a good day JackieLook forward to any advice about pip or anakinra Hope you all have a good day Jackie

Azathioprine or methertrexate

When I mention the anakinra now to the consultant all he keeps saying is we don't know if we can get funding and it's got lots of side effects, can get infections so easy.When I mention the anakinra now to the consultant all he keeps saying is we don't know if we can get funding and it's got lots of side effects, can get infections so easy.

Has anyone been given anakinra (Kineret) for their SS?

Anakinra is sometimes used in difficult-to-treat Sweet's syndrome when most other treatments have failed. Has anyone been treated with anakinra, and did it work for you? Thanks.Anakinra is sometimes used in difficult-to-treat Sweet's syndrome when most other treatments have failed. Has anyone been treated with anakinra, and did it work for you? Thanks.

Shell567Sweet's Syndrome UKin Sweet's Syndrome UK

Help with stills disease

they have said im doing so well at mo because of sll the steroids ive had but they are now trying to cut them down but will another 12 weeks so its hard cos while i feel good they said i good go right back to hardly walking or being able dress meself so they are talking bout applying for funding for anakinrathey have said im doing so well at mo because of sll the steroids ive had but they are now trying to cut them down but will another 12 weeks so its hard cos while i feel good they said i good go right back to hardly walking or being able dress meself so they are talking bout applying for funding for anakinra

What is the treatment for Sweet's syndrome?

Other treatments include tetracycline antibiotics; infliximab; immunoglobulin; methotrexate; chlorambucil; cyclophosamide; interferon alpha; anakinra. Read more about treatment options @ http://helpforsweetssyndromeuk.wordpress.com/key-information/what-is-the-treatment-for-sweets-syndrome/Other treatments include tetracycline antibiotics; infliximab; immunoglobulin; methotrexate; chlorambucil; cyclophosamide; interferon alpha; anakinra. Read more about treatment options @ http://helpforsweetssyndromeuk.wordpress.com/key-information/what-is-the-treatment-for-sweets-syndrome/

Shell567Sweet's Syndrome UKin Sweet's Syndrome UK

Hip pain turned into something very much worse !

Hi My daughter has adult onset stills ..diagnosed November last year.she has been quite unwell and had everything given to her under the sun.she is now on anakinra inj ,methatrexate,and steroids and boatload of analgesics.she has suffered with the pain in her left hip since diagnosis and I have watchedHi My daughter has adult onset stills ..diagnosed November last year.she has been quite unwell and had everything given to her under the sun.she is now on anakinra inj ,methatrexate,and steroids and boatload of analgesics.she has suffered with the pain in her left hip since diagnosis and I have watched

Adult onset stills and strep throat

We hoped that this and her anakinra and methatrexate injections would sort her out. Unfortunately the hospital didn't inform us that she had a strep throat before we went.daughter went into a complete flare.We hoped that this and her anakinra and methatrexate injections would sort her out. Unfortunately the hospital didn't inform us that she had a strep throat before we went.daughter went into a complete flare.

Advice on Anakinra injection please

Also big red wheals at injection site for anakinra..any one else been on this with this side effect?Also big red wheals at injection site for anakinra..any one else been on this with this side effect?

I have 3 different diagnoses: Sweet's Syndrome (rare urticarial variant), Urticarial Vasculitis, and Chronic Urticaria

I think Anakinra injections helped, but I had such bad injection site reactions. Does anyone identify with my story here on my blog? http://notsosweets.blogspot.com/2013/01/reliving-nightmare.htmlI think Anakinra injections helped, but I had such bad injection site reactions. Does anyone identify with my story here on my blog? http://notsosweets.blogspot.com/2013/01/reliving-nightmare.html

notsossweetsin MY SKIN

Anakinra

I was wondering if anybody else was on 'Anakinra'? And what have you found it like?I was wondering if anybody else was on 'Anakinra'? And what have you found it like?

SianLouisein NRAS