Its ages since I've posted anything as been going through so much pain and fatigue. Today's the day i should get the phone call to be accepted or declined, for the third time, for anti TNF!! It should have happened two weeks ago, but my notes had been sent to another dept and my case couldn't be discussed.
I was feeling so negative about the whole thing and wondering how my life was going to go on with constant pain.
So there's a lot hanging on this decision.
My rheumy has done DAS score on my feet, which is a bit different to the norm. The RA has effected my feet badly and has been a lot of change in them the past year, was took off Gold two years ago!
I went to have them scanned with ultra sound for extra evidence to support my case. The woman doing the scan was amazed at the amount of inflammation present, mainly all around the top of foot, navicular area. It took on exactly the same pattern in the other foot. I have to say i was pleased that the inflammation showed and she was able to take extra images as evidence to be shown. Then a couple of days after, the awful realization hit home about the damage done!
I really don't want any more surgery as had a fusion done to foot, the post- op was the worst, 12 long weeks in plaster and 6 of them non weight bearing, hopping on a zimmer frame!! So i hope to get something like yesterday, to slow down this process.
Been on all the usual drugs, methotrexate, leflunomide etc, so only been on pain killlers with no anti inflammatories, due to the usual stomach probs.
Just needed to share this and i hope you all are as pain free as can be.