Pain in legs and body post dialysis

[ashok5085]

I am experiencing pain in legs, knees etc and general weakness after dialysis. Please advice.

[Naila_Bi1991]

What type of pain you experiencing? I get restlessness in my feet and legs and also I get them in hands and arms sometimes

[ashok5085 in reply to Naila_Bi1991]

Yes same for me. Wat do u do to tackle this?

[3Kidneys in reply to ashok5085]

Are you doing hemodialysis or peritoneal? When I was on hemodialysis I felt much the same after dialysis, all I could do is sleep when done with a treatment- could barely make it to the car. In fact several times they had to wheel me out in a wheelchair. I’m now doing peritoneal dialysis, and while it has it’s own set of challenges, I’m much better than when on hemodialysis, I even work full time and do my treatment at night while I sleep.

[ashok5085 in reply to 3Kidneys]

I am also on hemodialysys.

[Jayhawker in reply to 3Kidneys]

You mention challenges with PD. Could you share some of the challenges you're experiencing with PD and what you do to address them?

Thanks,

Marj

[3Kidneys in reply to Jayhawker]

Drain pain is the # one thing. Not all people get it - but basically tha machine just keeps trying to pull fluid out when there is nothing left. It’s easy to fix, but for a few minutes it can hurt. You just need to learn how to override the machine and your nurse will teach you how to do that. But the diet between hemodialysis and peritoneal dialysis is a totally different thing.

[PracBob in reply to 3Kidneys]

I have had similar experiences. I'm doing much better now on PD.

[Naila_Bi1991 in reply to ashok5085]

I am medications for it called Ropinorol I was 0.5mg now I’m on 2mg. cause the 0.5mg wasn’t working for me and I started the 2mg today and hopefully get a better nights sleep. I am going onto PD catheter and should be starting dialysis at home soon

[Chicken_Jorge]

You are possibly being over dialysized. During HD there are two phases. 1. The simple cleaning of your blood for the first 3 hours.

Then in order to get you to your dry weight they go ultra filtration that 4th hour.

In most cases the technician is guessing what your dry weight is and will pull excess water from your body. This causes cramps. Well in me it does and I mean immediately.

Also because I have residual renal function and dont have diabetes, or other comorbid illnesses, other than hypertension, though nothing to sneeze at since its what did me in, I only eat once a day, though I eat what I want and as much as I want and closely monitor my water intake. Though I don't eat just anything anymore.

I never have highly fluctuating numbers of creatinine, urea potassium or phosphorus.

I get one iron infusion per week via IV and take 30,000 iu of Procrit per week because of anemia. I also get a Vitamin infusion once per week.

Now, my greatest nemesis has been from within from diverticulitis flare ups. These flare ups have hospitalized me twice and caused me infections. Both times causing my PD and HD catheter to be cautiouslly changed.

For that reason I only eat once a day hoping that intermittent fasting will give my intestines a chance to heal.

Believe it or not I drink dill pickle juice for my cramps. Usually Vlasic. They even sell a product called Pickle Juice on Amazon that helps also and I never have sodium overload.

Pickcle juice actually works and even athletes use it to stop cramps. Google it.

Good Luck and stay strong.

[ButterflyLady1]

I put ice packs where the pain is. Sometimes mine gets so painful that I get depressed. for me it is hard to deal with a machine that keeps me alive but causes pain at the same time. I have been off and on dialysis for 20 years. transplant in between. I was still in my teens when my kidneys failed. As I read a lot of stories on this site, it seems like we all go through the same kind of things. It sounds strange to say this but I feel a little but better knowing others are dealing with the same kind of things. Life is funny in that way. I am crand new to talking about dialysis on the net. But I feel this might just be the place to keep my spirt up and hopefully help people who are brand new, with all the things I have gone through in my life. Thank you for sharing your story, try Ice packs. I would like to know how it works for you. Maybe all of you have things I can try also. I hope you start to find the right thing that works for you