Hi stage 5 CKD with creatinine at 3.48 and egfr at 13.38 how much time I have left ?

[CKD5]

Hi stage 5 CKD with creatinine at 3.48 and egfr at 13.38 how much time I have left without dialysis and transplant ? Only on medical management

[Bassetmommer NKF Ambassador]

You could get run over tomorrow by a bus...NO ONE can tell you how long do you have left. Basically, death from kidney failure is miserable. You literally drown in your own fluids. Why would you let that happen. Dialysis is hard, I will be the first one to say so, but it a could solution that can keep you alive for years and years. And then there is transplants.

As far as for now, I was at a lower GFR than you when I started. My levels of toxicity were not awful actually. But since I was going to do home hemo and the raining is quite intense, I had to have a clear mind. It is all how you feel and how toxic you are. But there is a point where you become quite ill and you mind gets pretty messed up and it is difficult to start dialysis when you crash into it.

[ShyeLoverDoctor]

I went on dialysis when my creatinine was 7, I felt very ill, very weak. It all depends on how fast you are declining and why. No one can really say how long you have neither can I without more information. Dialysis is life support. You will have to start if your potassium is too high or blood pressure can’t be controlled or bad electrolyte imbalance or uremia which is a syndrome, a collection of toxins making you sick . Tasting metal in your mouth, nause. When it starts to affect your thinking, that’s a cause.

No one wants dialysis but there are things worth living for.

[Denise-80]

Hi CKD5 - My cret was 5 and GFR was approximately 9.8 when transplanted. I did not do dialysis. I was starting to feel pretty poorly and would have started dialysis soon had I not gotten the call. I did all the training and was ready for dialysis if necessary. Everyone is different. I would suggest paying close attention to symptoms and report them I’m guessing you are on the list. Best wishes to you.

[Beachgirl32]

it depends how you feel I felt line when my eGFR was 13 I even went to my daughter wedding at 9 efgr but when it got to 8 my doctor said you may think you feel good but we want to get you on dial before toxins set in so that was over one and half years ago .

[Darlenia]

As many have said, it depends on how you feel, your lab reports, and even your blood pressure. Regarding toxicity levels, they watch your hard data very closely, e.g. Creatinine, BUN, etc. - eGFR is only an estimate. In my husband's case, he wound up on emergency dialysis to bring down his blood pressure, it wouldn't respond to anything else. His numbers when he started on dialysis were: EGFR 6, Creatinine 8, BUN 114, BP 240s/120s. If his BP had behaved itself, he was told he could have gone a few more months without dialysis. At the time, he was 70 years old, still active in his career, took walks, etc. But I noticed he had restless nights, his digestion was wonky, etc. Something was bound to happen. The unfortunate thing was that he refused to consider getting an access in place (takes a while for those to heal), so he wound up with an emergency hospitalization. If you do it right, everything can be done on an outpatient basis. By the way, this is also a prime time for you to position yourself for a transplant. Talk to your team. Some manage to skip over the dialysis situation and go straight to a transplant. That is the best outcome of all. If you chose to do nothing at all, then it's just a matter of time for this life to end - depending on your overall health, it may smooth or rough as toxins and fluids build up to an unsustainable level. Other things may happen too - cardiac issues, etc. This is best discussed with your team - sometimes, with palliative care, they can make you more comfortable by removing extreme edema via dialysis, etc. With hospice, dialysis generally isn't an option. Hope this helps as you chart your path ahead.

[Wescott]

Hi CKD5I have a gfr of 13 and like most people I've wondered how much more time I have. I've learned to take each day as it comes and to take pleasure in all of them. After many discussions with my nephrologist, my kidney nurse and my family, i have decided that dialysis is not for me. I have been assured by my team that I will be kept comfortable with conservative care. Obviously this is a very individual decision. My decision may have been easier for me becausr3I am 76

[crackers2 in reply to Wescott]

Hi Westcott, it is hard to make a decision when at an older age with kidney disease. I am 82 not at stage 5 yet, but I have also decided not to go on dialysis because of other health problems . I am at peace with that decision. I am sure it must have been hard for you to decide also. You have a wonderful mindset about enjoying every day as it comes and the wonders of small things.

I don't agree with one of the unnecessary comment by someone about the passing of ckd.

I wish you the very best enjoying your life 💗

you are in my thoughts and I send a big hug to you.

Crackers2

[FelineFandom146]

Hello: As many others have said here and my nephrologist told me when I asked the same question, "I don't know. I can't say. Every one is different and an individual. No one can know. It depends on many factors, including how you feel and clinical signs: lab work, edema, etc. I'm in Stage 5 with my recent eGFR of 10 in May this year. My nephro doc wants me to get the prep work done for dialysis (surgery for fistula or graft) or on transplant list. I've delayed that for now. I'm doing a Whole Food Plant Based Very Low Protein Diet. Dialysis is not for me and I do plan, God willing I can hold out for a kidney transplant. Neither option offered is a fix. I'll take each day as it comes and go from there. Hang in there. In Europe, diet is a third option to delay or even reverse kidney disease progression.

[Helloyall]

Doing g nothing maybe a month or two. You need to be on dialysis not. If it was an acute injury such as sepsis, with the dialysis they could recover