I just got diagnosed with stage 3 ckd. gfr is 57. creatinine is 1.6.
I'm 37, newly married. I don't know that to do now. I started crying and I cant share this with my wife. She is happy right now after suffering her entire life financially or some other way.
She is so happy now with married life. I cant do this to her now.
Tomorrow I'm going to meet my nephrologist.
There is hope for you. I was diagnosed at CKD 3b and put on appropriate diet and my CKD progression is under control. Ask your nephrologist for an appropriate diet for you.
Thank you for your support. I plan to tell her once my visit to nephrologist is done, but I'm so scared right now.
you need to tell her.this is not something you deal with alone if you can help it.your number is pretty good and a change in diet and exercise can keeep it there.she sounds like a strong woman and i hope you two work together on this
Oh Sri! I feel for you. As Orangecity said, there is definitely hope for you. You are in the 21st century with all of its wonderful advances in healthcare. Your nephrologist will figure out the reason for your numbers - the reasons can be as basic as exercise, diet, and hydration to more complex reasons such as autoimmune issues, diabetes, etc. For most everything - there are ways to stop matters from progressing or even turning it around. So look on the bright side. You have a lovely wife and she'll be a great asset and support to you when you're ready for that. You also have a nephrologist and science on your side - science that will continue to move ahead with new discoveries and treatments and more. Your numbers can be sent in a positive direction - it does happen. And, if not, they're still pretty good as they are now. Trust me, the sun will shine again. Reach out anytime for our support. And if you feel up to it - the outcome. It would be interesting to see what your doctor says. This community truly cares about you.
With that attitude, I know you'll do very well in handling your situation! You are not the type to ignore matters as so many do. I see positive outcomes for you. Blessings!
First thing I would do is have a 2nd test. Were you dehydrated? What did you eat before the test? What kind of exercise did you do? Too many factors go into the results to rely on just one test.
try not to worry. I was diagnosed with ckd stage 3 around 18 years ago. Nothing much has changed in blood tests. Enjoy life, don’t stress. All will be well ❤️
Do you know that doctors wait 3 months before final diagnosis? And if you need to cry for a while, there's all right. Your sharing your feelings with us is a good start.
do you know that when you get a blood test the eGFR is just an estimate which is what the e stands for? They use your creatinine result to get the eGFR result so you in fact may not even have kidney disease. There are many reasons for high creatinine as others have said above. Please don’t Google. Just leave it to your nephrologist. You have to have three tests in a row over three months to get a diagnosis. Your high creatinine could be from something quite easily fixed. Please don’t worry
As others have said, don’t panic, there is more testing to be done and things to learn so don’t think the worst. I was not officially diagnosed until I had three consecutive tests because dehydration and even a heavy workout can change your test results. At the lowest I had an eGFR of 53, but following my doctor’s and dietician instructions I gained a few points every 6 month blood test. I’m two years out and am now at an eGFR of 66 (and hopefully still climbing). A lot depends on why your kidneys are declining and how lifestyle changes can affect that. My new way of eating, exercising, managing stress etc has been a good thing for me and my family and we now see that an early diagnosis while eGFR is in the 50s was a blessing because I CAN make lifestyle changes. There is much that is within your control, but don’t beat yourself up over things you didn’t know before. You will learn and hope will return. The support of your wife is essential on this journey, and once the initial shock is past, the two of you can make a plan and it will be so much easier for you both to learn together. My thoughts are with you both, keep us posted, and know that you are not alone, we have all been in your shoes.
Hello … I felt the same way at first . My mother who is in her 70s would be devastated. Just a few years ago we lost my brother to kidney failure . He was 43 and it crushed my mom . 2 years before that we lost my sister . So I knew my news would hit her hard . I was stage 4 .. I decided not to keep this from her . Reguardless she deserved to know . If something happened she would be very hurt I kept it from her . So I told her .. She of course was upset . But I promised her I’d do all I can to keep this from getting any worse . And she gave me lots of encouragement and prayers ! I just recently had my labs done and not only did I prevent this from getting worse I actually improved . I’m know stage 3A ! I decided to not keep this from my family because if this was them with CKD and they didn’t tell me I’d be very hurt and disappointed that they kept this from me .. You kind of have to put yourself in thier shoes . It helps to have someone to talk to about your CKD . It does help to have a support system. And if something was to happen to you she would need to give an accurate medical history on you . Of course this is just my opinion. You know your situation best and you know your wife best . I wish you well .
Thank you for your support. I just told my wife she is ofcourse sad right now but she is strong and I know she will overcome her sadness quickly. Love till last breath.
I was in stage 4 … and thru healthy eating and light exercise I manage to get my eFGR to stage 3A !!! My nephrologist nor I expected that ! I was trying to keep my kidneys from getting worse !!! So anything is possible! I was needing dialysis and now I don’t ( for now at least ! ) I hope to not go back to stage 4 ! So my new eating habits are here to stay ! And my diabetes is now under control as well ! I’ve lost 83 lbs so far ! I’m sure your wife will be very supportive and now you won’t have to go thru this without her ! It’s good to have support from family and friends if possible ! One of my youngest daughters has been very supportive for me and she encourages me ! And I’m so very grateful! Keeping all of this bottled up inside can be frustrating and so stressful! It’s good that now you have your wife to talk to about your journey ! I even got into counseling ! I have ALOT of health issues.. So it’s great that I now can talk to another person as well that’s a professional and can help me navigate thru all of this ! I wish you well !
Keep doing what you're doing!
My story the same as those responding and I'm so grateful these wonderful humans care enough to provide encouragement and hope. It's been 2 years for me and I started with first diagnosis of CKD 3A; eGFR 55, January 2022, but can't recall creatinine level, and BUN/creatinine ratio wnl? Anyway, with mostly plant protein diet, 80 ozs water daily, BP medication for newly elevated BP and some walking activity, my last creatinine =0 .70 and eGFR 95 on February 9, 2024. All labs in between this time frame have been lower than 95 and higher than 55.
I've had so many other issues though with Sjogren's Syndrome and heart arrythmias. My Nephrologist has had nothing but encouraging words for me since I became her patient. I hope for the best outcome for you! Take care...
And I might add that I admire everyone's attitude as they journey through this process. I was so depressed, anxious and couldn't sleep for months... there is hope!❤️🔥☺️☺️
I am so lucky to be here with all of you lovely people supporting each other. I revealed my problem with my wife and she is so supportive (she felt sad and cried initially). We decided whatever life throws at us we will face it together. I reduced my salt intake, started walking 40 mins every morning, stopped eating non-veg and BP is now 110/70. Your progress gives me hope. I will meet my nephrologist in another month to monitor my progress.
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