Diagonized with stage 3 ckd. Creatinine level is 2.32 on a low purine diet, low potassium diet. Should I get married?

[Chooselife_ani]

Should a ckd stage 3 male patient get married? What are the complications that might come? Will I mandatorily go to dialysis stage even if I follow full restricted diet?

Age:32 yrs, male

[Hidden]

Hi and welcome to the community. That is not a question you are going to get an answer for here. Do you know what caused your CKD? One of the best ways to slow the progression of CKD is to get under control any underlying conditions. The two leading causes of CKD are diabetes and hypertension. There are numerous others illnesses that can lead to CKD so, if you don't already know you should ask your nephrologist and perhaps they can run some diagnostic tests to determine what caused your CKD.The best way to answer your question is to provide you with this website, kidneyschool.org and have you and your fiance view the learning modules and talk to each other about what living with a chronic disease entails and be as up front with her as possible.

As you will learn, following a kidney-friendly meal plan, a medically approved exercise regimen, keeping underlying health issues under control will make it possible to slow the progression of CKD.

Should the day come when your kidneys fail, you'll have to make a decision on the modality of dialysis you wish to have and possibly even a kidney transplant. These are questions you will have to have with your nephrologist when the time comes.

It is wise to share this information with your fiance, rather than keep it to yourself and make the decision without her input. Just be sure that both of you make the decision based on sound medical information and not from fear and misinformation.

Best of luck.

[userotc in reply to Hidden]

When you state:" ....questions you will have to have with your nephrologist WHEN the time comes", hopefully you meant IF (to be consistent with the earlier "should the day come")? Im not wishing to be pedantic with words but think this is key. Ive always assumed that good CKD management might delay kidney failure indefinitely i.e. you may eventually die of something unrelated.

[Hidden in reply to userotc]

The English and Americans are two peoples divided by a common language.

Have a nice day.

[userotc in reply to Hidden]

Thanks. Im relieved you agree that good CKD management might delay kidney failure indefinitely. Take care.

[medway-lady]

I crashed to 8 and am now 30 some two years later. Life is normal and its not a death sentence. So why should you not get married its inevitable you will die but at some time in the future of something that may be entirely unrelated. It just have been a shock as it was to me but I did go for counselling and it really helped adjust. Now I barely know anything is wrong and am definitely not planning mu funeral but where to go on holiday next year. If your in the UK you can find your local kidney support group and be able to talk to people who may have felt the same. Talking about it is a good idea due to the fact mine was an injury no diet would have made a difference but it was stressed to drink a lot of water and I still do that at least 3 pints a day plus tea, coffee, etc.

[Michael__S]

Should you get married, why not? With or without CKD it's a personal choice and I don't see anything more to it. Since you ask I am tempted to say yes.

For dietary restriction ask to be referred to a renal dietician, if unavailable to a registered dietician. I am at stage 3a and only had access to a registered dietician at first and it have been extremely useful. The (former) Urologist was merely telling me "low protein" and to avoid red meat, a conversation that lasted less than 30 seconds and nothing specific. The registered dietician filled the gap.

It depend of your bloodwork and other conditions (if any) as to how restrictive your diet need to be, something to be determined by your team of specialist. You may or may not need to restrict the amount of potassium you eat for example.

[Jumbo1]

You still have 4 -6 yrs before need dialysis/transplant.

[RoxanneKidney in reply to Jumbo1]

lol. We are all slowly dying hahaha. Probably be divoriced before ESRF. Jks.

[Skeptix]

If you said you were 18 yr old or 98 yr old you would get two different answers!

I'm 7 years CKD starting higher 3a, now at lower 3b and ignoring of it until recently. Now 57 yr old.

1. If you read around here you will quickly see that medic quality is a varied pot. Folk will have great experience, folk will have terrible experience. Primary, nepbrologist, dieticians, etc.

2. You will constantly see folk saying that you have to be your own advocate. Your doc, your nephrologist, you renal dietician have to be overseen by YOU. Which means, of course, you need to saddle up into managing and becoming knowledgeable about your disease. You cannot delegate this to another.

3. There is a body called the NKF. They run this site. The National Kidney Foundation. I live in Ireland and the NKF are looked to for guidance here so it appears to be a world leader. It is important to know that in 2020 (and well overdue, apparently the guidelines were expected in 2016) the NKF issued new guidelines for the treatment of kidney disease. Kidney docs the world over would be guided thus.

The previous guidelines (which set / influenced the treatment paradigm the world over) were issued in 2000. A long time ago.

What was very important in the 2020 guidelines was the recommendation to commence treatment in early stages of the disease (e.g. stage 3). Previously (the 2000 guidelines) treatment was reserved largely for end stages or as a prep for dialysis/transplant. The 2020 guideline interventions seek to delay (some would say prevemt) progression of the disease.

How long a delay is a question with no answer yet. But intervening early is considered worthwhile, given the alternatives

4. The intervention guidelined by the NKF and suggested by most recent science is dietary. Namely, a low protein or very low protein + supplement diet

5. Medicine moves slowly. There is a fair chance that if you walked into a nephrologist today you would find that they are operating according to the 2000 guidelines.

This is important.

It takes time for the latest science to filter down to clinical practice. It is unlikely (at least, it hasn't happened in Ireland) that a recommendation labelled 2020 will be implemented in 2020 or 2021 or...

As part of your self advocating you would want to get up to speed on kidney treatment so as to assess the ability of your docs. If that sounds daunting / ass about face then welcome to the dilemma.

-

Since there are all kinds of kidney disease and given the lack of data as to how dietary intervention will affect each and every kind of kidney disease, its impossible to say how yours will pan out.

But many folk here have had CKD for many years and they are still going. So I suppose the answer to your question is this: delve in and find out about it and present the straightest case you can to your betrothed and see what they think.

Marriage, in my own and many others experience is a challenge. Its not as if CKD is the be all and end all of challenges.

[Live_Positive]

One advise will help all, if we start mentioning age. That definitely help other readers.

Your partner should know your problem so that you can make right decision. As someone said above, it is not death sentence. If you are young you can live good satisfying life. Your first act should be to delay the progression. Diet is the key, go on plant based diet. Second would be to stay healthy so that when time comes you can be recipient of transplant. Not every one gets to have transplant. Good part is that kidney has solution unlike other organ failure. I have seen on this forum people with 30+ years post transplant, and all mention to have good life. It all depends upon how you decide to lead your life now on. Please remember, do not get discouraged, Your positivity of mind will help fix all issues.

[LuvSmallDogs]

Your fiance has to know what she is marrying into... the disease, that is. That said, you could live a very long life yet, so if she is willing to sign up then you should probably go for it.... For myself, I was diagnosed with a GFR of 29 when I was 64. At that time I stopped all my medications. GFR went up to 47. Over the years it has gone up and down a bit, but a couple of months ago I dropped 7 points in 3 weeks, and my neph was concerned I was heading for end stage. Since then I have gone plant-based vegetarian/vegan, taken off 13#, swelling in extremities has gone away, and I am hoping to live some time yet. Nobody knows when you are going to die; not even doctors. Twenty years ago doctors gave me 3-5 months to live due to congestive heart failure, and pulmonary hypertension. I started using homeopathic medicine, and thankfully am still here today. You too could be here many, many years yet. Enjoy them.