Kidney Biopsy

[phebamom]

Kidney biopsy on Tuesday, today is Friday. Did not hurt except for a milli-second when the ten inch long needle punched through muscle tissue. Biopsy at Mayo clinic in Rochester. Just two weeks on Clonidine patch and vegetarian diet, and GFR is up to 36 from a low of 30, and creatinine is down to 1.51 from a high of 1.81. So, on the right track. Am hoping biopsy does not show MGRS, which is what nephrologist suggest is the cause. MGRS diagnosis means chemotherapy to treat. I will survive. A line from favorite support song: Duran Duran; An Ordinary World. Anybody else have a support song?

[Ziggydoodah]

I don't have a song as I listen to everything 😂😂😂...however I did get Ritrixumab sorry not the direct spelling. It was just like getting fluids. Unfortunately it did not make any difference. However I had absolutely no side affects. No nausea or anything. Just wanted to reassure you if they decided to treat you with that medication. Good luck with everything and keep blasting the tunes 😁😁😁

[CuriousCKD]

I hope your biopsy does not detect anything serious. ☺️

[phebamom]

So far biopsy is showing crystalized protein in kidneys, so that may be serious. I am surrounding myself with the things I love, especially music, but Ordinary World resonates with me. I am also having fun revisiting the scents of my youth. I am collecting vintage fragrance. I only wear a tiny bit at a time because of immune system, but I am having fun.

I am on Actemra right now, which is in the same family as Rituximab. Both are biologics. If I start Rituximab I will have to stop Actemra. Biologics are slow working. The actemra took over a year before it brought my SED rate down . I have Giant Cell Arteritis, and Polymyalgia Rheumatica. You know, I never smoked, drank very little, always ate well. Still ended up with all of these disease. There are just some things in life we have no control over. A song about grieving. I think we all grieve for what we have lost with this much illness. We long for who we were when life felt normal.

Came in from a rainy Thursday on the avenue

Thought I heard you talking softly

I turned on the lights, the TV, and the radio

Still, I can't escape the ghost of you

What has happened to it all?

Crazy, some'd say

Where is the life that I recognize?

(Gone away)

But I won't cry for yesterday

There's an ordinary world

Somehow I have to find

And as I try to make my way

To the ordinary world

I will learn to survive

Passion or coincidence

Once prompted you to say

"Pride will tear us both apart"

Well now pride's gone out the window

Cross the rooftops

Run away

Left me in the vacuum of my heart

What is happening to me?

Crazy, some'd say

Where is my friend when I need you most?

(Gone away)

But I won't cry for yesterday

There's an ordinary world

Somehow I have to find

And as I try to make my way

To the ordinary world

I will learn to survive

Ooh-ooh-ooh, ah-ah

Oh, yeah, oh

Papers in the roadside

Tell of suffering and greed

Fear today, forgot tomorrow

Ooh, here besides the news

Of holy war and holy need

Ours is just a little sorrowed talk

And I don't cry for yesterday

There's an ordinary world

Somehow I have to find

And as I try to make my way

To the ordinary world

I will learn to survive

Every world

Is my world (I will learn to survive)

Any world

Is my world (I will learn to survive)

Any world

Is my world

Every world

Is my world

[phebamom]

UPdate: Diagnosed today with MGRS. Start chemotherapy in next few days, as soon as oncologist reads the biopsy results and formulates a treatment. Still on vegetarian diet and loving it. I don't know what drugs I will be given.