My story..: After being diagnosed with lupus... - Kidney Disease

Kidney Disease

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My story..

Christie12 profile image
16 Replies

After being diagnosed with lupus in 2013, I thought that I had gone through the worst. Then in 2014, I experienced my first kidney failure, which was a horrible experience.

The first sign of my kidney failure was a UTI. I was sent home from the emergency room multiple times over a month's time and they kept diagnosing me with kidney failure. During one of those emergency room visits, they gave me antibiotics that made my throat swell and I felt like I could not breathe. I ended up going back to the hospital where they had to give me something to counteract the reaction I had received from the antibiotics.

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Christie12 profile image
Christie12
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16 Replies
Bassetmommer profile image
BassetmommerNKF Ambassador

HI Christie, you have been through a lot. Just want to ask you something.... you keep saying kidney FAILURE.... if you have kidney failure, you should be on dialysis. If you have chronic kidney disease, there are things you can do to help yourself. Do you know what stage CKD you have?

Christie12 profile image
Christie12 in reply toBassetmommer

Stage 5 (GFR < 15 ml/min): Kidney failure (also called end-stage renal disease, ESRD). Dialysis or a kidney transplant is needed to survive, I am going through the worse moment of my life right now, I welcome death to come take me away!!! AM TIRED!!!

CKD2-4 profile image
CKD2-4 in reply toChristie12

Hi Christie. I am so sorry for your experience. Please try not to lose hope. Three years ago I was diagnosed with a GFR of 12. Through some diet changes and exercise I was able to improve my GFR to 18. While everyone’s journey is different depending on what caused the CKD you might be able to improve your kidney function. I would say to ask your Dr to see if there was anything you can do to improve your kidney function. .

Christie12 profile image
Christie12 in reply toCKD2-4

What do you sugggest I do please

CKD2-4 profile image
CKD2-4 in reply toChristie12

I would say to review your labs with your doctor and ask what changes can be made to improve your numbers.

OldTownhammock profile image
OldTownhammock in reply toChristie12

Or request a consult with a renal dietician.

Lifeisagift93 profile image
Lifeisagift93

you can watch more Dr G about goodbye lupus. she helps people go off Dialysis by following her diet. I m following it now. And I have số much hợp for the next blood test

bevgt profile image
bevgt in reply toLifeisagift93

Where do I find Dr G diet please

Lifeisagift93 profile image
Lifeisagift93 in reply tobevgt

goodbyelupus.com/6-steps-to... can watch her on YouTube goodbye lupus or join group smoothie solution on fb

Bassetmommer profile image
BassetmommerNKF Ambassador

Christie, at a GFR of 15, there is hope. I was told I would be on dialysis in 6 months and was able with diet and healthy lifestyle to go for six years. I did not start dialysis until I was GFR 7. I also have an autoimmune disease. Hang in there. They can help you with your Lupus to get that under control and you can work on getting you numbers up.

Christie12 profile image
Christie12 in reply toBassetmommer

Thank you so much, this is what I needed, you are Godsent

punkin1406 profile image
punkin1406

A UTI is not kidney failure. What is your Gfr? There are 5 stages to CKD. Has a Dr diagnosed you with it? If so, there are things you can do to help yourself. Don’t panic.

Christie12 profile image
Christie12 in reply topunkin1406

Please tell me more dear, I really need it Gosh

punkin1406 profile image
punkin1406 in reply topunkin1406

I don’t know your specific situation and I am not a doctor. Talk to your doctor about your concerns.

Christie12 profile image
Christie12 in reply topunkin1406

Alright sure.., thanks anyway

barbara55109 profile image
barbara55109

Are you on dialysis? You say you've had failure. that usually means dialysis or transplant are needed to live, but this happened 10 years ago. Did your eGFR increase? I you went below 15 and then back up what it probably was is an acute kidney injury. What is you eGFR today? What are your dr.s telling you today?

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