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Kidney Disease
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Clonazepam! So this is the CKD culprit?

Well, searching for a cause gradually refined it to a suggestion and now a statement, gleaned from medical journals:

'Ckd is found among people who take Clonazepam, especially for people who are female, 60+ old , have been taking the drug for 10+ years, also take medication Nexium, and have Gastroesophageal reflux disease. This study is created by eHealthMe based on reports of 76,216 people who have side effects when taking Clonazepam from FDA, and is updated regularly.' (https://www.drugs.com/mednotes/#/profile/c1536743732060/report)

Anyone else on this?

I am CKD3a. I am beyond anger that my GP has not picked up on this contraindication, but have just written to ask to see a nephrologist. So very many times in my life I have had to find answers myself. I know GPs are incredibly under-resourced at the moment, but basically it means you are just left, instead of properly investigated.

Anyone else on Clonazepam?

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Yes today and a few more weeks left of weaning off. It has been the worst experience of my life. Never again. I know some people need it though and I understand. We have to weigh the benefits. And been on acid reflux medication for almost 25 years. Stage 3b

Love going out to all needing prayers๐Ÿ™๐Ÿป๐Ÿ™๐Ÿป๐Ÿ™๐Ÿป

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Prayers are with you!๐Ÿ™

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Many of us share your experiences and feeling toward the medical community. Just seeing a nephrologist may not relieve those feelings. I and others have found that sometimes we are the ones who can help ourselves the best, after much research. You can help yourself, and have shown that by what you have discovered. Do a search here for Mr. Kidney's comments. He is very wise and has overcome much. His advice should be helpful to you.

lowraind

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I am on clonazepam but not on a regular basis. I only take it for RLS which I only have every few months so a bottle of 30 will last me years. I imagine it is difficult for GP's to keep up with all the contraindications of some medications and diseases. It is up to us to become informed, educated and "self-manage" our illnesses well so when we do see physicians we can ask the right questions and offer the right information. Wishing you well and good for you for figuring this out. ADVOCATE ON!! Blessings

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Many thanks KidneyCoach.

I agree about doctor's knowledge limitations and think it applies to those higher up the chain too; research is so detailed and voluminous. BUT, it's awkward referring your doctor to information you have dug out, albeit it might be from a reliable medical sourse. It can't help but run the risk of annoying them, regarding you as a Googleista, feeling undermined and lacking authority, and so on. My last GP was quite ok with this - and knew me and my peculiar disorders for many years and accepted that I research my afflictions and the findings; he retired and the new doctor knows nothing about me, would have to look up my complex medical history which she won't have time for, and is seeing me just as this year has dumped on me a crescendo of new ailments! I am sure she regards me as a hypochondriac.

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I think the real issue of clonazepam is that the metabolites are removed by the kidneys. If you have CKD and lower renal funtion - after a point you could build up too much of the drug in your system. Thats probably true of many drugs. What I have never seen is anything that talks about clonazepam or benzodiazepines hurting your kidneys - at least in Stage 1, 2, 3 - and possibly even 4.

EHealthme tends to simply report FDA complaints which anyone can make. These are associations that people think they observe with drugs and specific side effects and interactions. They are not significant numbers for CKD at all. eHealthme tries to draw correlations to other indications, but it is streching reality when it tries.

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When ever you have a new drug, or are taking drugs for a while, your doctor should be checking for contraindications. Most major electronic medical record (EMR) systems have built in notifies that come up when a new prescription is added to your record. It also happens at the pharmacy. The issue is not always with the doctor. If the prescription has not been tagged or reported because so few instances have happened, it may not be flagged.

You can take your med list to the pharmacy to have them review it if you feel your doctor has not.

Also.... and I don't agree with this, sometimes the doctor knows of the issues and prescribes it anyways because the medical symptom they are dealing with warrants it.

That is when you need to do your own homework and then have a frank discussion.

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Yes--I was, but not now. I was taking Clonazepam for about 5 years, along with another anit-depressant I can't thnk of right now. My shrink said he would monitor my kidneys, but he never did, and of course I had no idea how necessary it was. So I was surprised when I was diagnosed at Stage 3 five years ago. I did not know clonazepam was the bad guy. Thanks for the info.

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