Hi I've been having some strange things going on. And I'm looking for opinions. Ok, I've had bladder issues for awhile. I've had frequent urination, incomplete bladder emptying and urgent urination. Constipation. My toes go numb and I have sun sensitivity. I've been off balance and had some coordination issues. Sometimes I feel like I have weights attached to my arms and chest at times and could just fall over. My blood pressure was high until about a year ago and gradually started going down without having made any changes and sometimes runs low now. Also, right before my BP dropped, I was getting these electric like shocks in my arm when I'd barely bump my arm and it hurt all the way to the bone. That finally subsided, but I did fall at work around that time and broke my finger in the process.. Brain fog and word retrieval issues. I could be thinking of something and words get jumbled in my head and say something not even in the ball park. My husband will say don't you mean something else and I'd say isn't that what I said. No, you said this(?) I wish I had a good example to give, but I can't remember one, just that it has happened. Also pain in the neck and shoulder and hip and lower back that will persist for awhile and finally abates for a time.
Symptoms. MS?: Hi I've been having some... - My MSAA Community
Symptoms. MS?
Have you been diagnosed with MS? If not, an MRI with and without contrast is the only way to find out if you have it.
No I haven't. I just wondered if it could be an MS issue?
If you haven't yet got an MS specialized neurologist you need to visit one for some testing to find out what's going on. Your symptoms are too many and too broad to be tackled by this chat room. We are not doctors, we simply help you to understand basic symptoms and what is going on with your symptoms and your body by sharing similar experiences and symptoms. Please keep us informed and let us kno how your symptoms and health progress. Always remember, we're only a text away for support. Together we are stronger. Fancy59.
Yeah I realize that you can't diagnose. I'm just seeing if any of these symptoms were similar to what actual people with MS suffer. I know not everyone suffers with the same symptoms. I'm trying to figure out if it's a Rheumatologist or Neurologist I need to see or both
I agree that you should start with a neurologist (preferably someone who specializes in MS). You don’t want to let things progress because of missing out on possible therapies. Best of luck and please let us know how you get on.
I think that sounds like relapse-remitting MS symptoms 🤔 not a Dr, but I would see a neurologist to get an MRI and their opinion. Tell them all that you've put here.I didn't get my diagnosis immediately, but I did get referred to a neurologist who specialises in MS, all because I'd started having simple partial temporal lobe seizures. A blood test to rule out a condition called CADASIL, a lumbar puncture, and an MRI later, I got given a CIS diagnosis (I was only 19), and then a year later I felt like I was having vertigo and a loss if sensation on the left side of my face! Another MRI later, where my vertigo had subsided, and I was given my clinically definite diagnosis. Now, 8 years later, I'm waiting on an appointment with urinary nurses and physios, my seizures have changed, and I've lost my ability to walk without aids. I'm only 29, tried to be a nurse and was walking/getting public transport everywhere!
I don't want to scare you, but every change in your body needs to be investigated 🫂 I hope you find your answer ❤️
Your so young. I have a daughter around your age. I'm sorry for all you've had to go thru. ❤️ Btw, what is a Cis diagnosis?
A CIS diagnosis is what you get when your symptom(s) don't follow the normal route, but there's definitely a lesion on your brain/spinal cord. I got it because I was having simple partial temporal lobe seizures, usually in my sleep, and my 1st MRI showed a lesion in my left temporal lobe 😬 got my clinically definite diagnosis 2 year later because I had vertigo and loss of feeling in the left side of my face, and a new MRI showed more lesions. I was in my 2nd year of nursing studies 😫 started my nursing a couple of weeks after getting my CIS diagnosis! I'm happy I still remember a few bits I learned from that 1st year, such as how to get someone into the recovery position, because I taught my husband how to do it when I started having generalised seizures back in late 2020. He remembered how to do it because his best friend (A) had a generalised seizure on our walk home from a night out, and I went from "Drunk Charlotte" to "Emergency Mode Charlotte" scarily fast 😅 I told husband what I was doing, and why I had him start a timer on his phone as I was getting A into the recovery position. Easy way to remember what to do: please Miss/Sir, I can't hear you, and I need a wee 😂
I was DX'd in '12 and I we share a lot of those symptoms and probably more! PLEASE get an MRI brain and C-Spine!Good luck! 😉
See a neurologist, preferably one who specializes in MS. The test for diagnosing MS includes blood work (looking for other diseases like Lyme), MRIs of the brain and spinal column, and a lumbar puncture checking the spinal fluid. Because the symptoms of MS are so varied and individualistic, these tests are the only way to diagnose the disease. When you have an answer, let us know.
The problem with MS is that there is no one symptom that will diagnose MS, the symptoms are widely varied and unique (Mostly) to each person. People on this wonderful website might each share some of yopur symptoms, but probably not all of them. MS attacks individual nerves in your brain or spinal cord, and that nerve can control anything in your body so the result is different for each person. I hope this makes sense for you. Best wishes to you. If you get an early diagnosis, you may be able to start on a medication to slow or stop progression, so please check with a neurologist, preferably one specializing in MS as soon as possible to get treatment started if treatment is called for.
Definitely see a neurologist. And if you happen to find one who isn't willing to take you seriously, then find another. I went through several before I eventually found a great guy who was willing to listen to me and do something about it.
I've had most of what you've describe, so I think you're on the right track.
I've had/have many of those symptoms.See a neurologist.
I am not any sort of doctor. I suggest getting a note to see a Neurologist that specializes in ms. Good luck
Get it? See a neurologist.
Bladder issues, sun sensitivity (heat), balance, coordination, brain fog, chest pressure (the MS Hug), are MS symptoms but I am not familiar with the others specifically for MS .
You should see a neurologist. They'll take you through a standard set of tests to narrow what this might be due to. There are many diseases with similar symptoms as ms. You don't want to be misdiagnosed but you should be diagnosed thoroughly to get a treatment that will make you feel better. Don't wait!
Thank you, all for responding. I didn't know if I was way off base. These symptoms are mild probably compared to most I'm sure. But, some symptoms stick around long enough to be bothersome and then kind of disappear. The one thing that has endured has been the. bladder problem. But it's severity comes and goes, but never completely goes away. At one point it was so bad they checked me for interstitial cystitis, which was negative. Anyway, I guess Ill now be looking for a neurologist.
Don't wait. My symptoms were mild and my GP always put it on menopause. Until I had a bigger symptom. I wish I had pushed for an earlier diagnosis and get on treatment earlier so that I would have fewer leftover symptoms.
If it's ms, you want to get ASAP on a treatment. It's your brain that gets damaged. And what's damaged never gets repaired, at least as of now. But good treatment can slow if not stopped the progression of the disease.
Yeah my Dr always made me feel like a hypochondriac. I had to diagnose myself when I had my Hyperparathyroid. I've been my own best Dr. sometimes. I kept telling him something was wrong. In fairness I guess I didn't give him all my symptoms. Some things I chalked up to something else. But, surgery cured that issue and they removed a good size adenoma from my thyroid. It felt good to be finally proven right and it was treatable. I think I'm in the beginning phases of menopause too. I'm 52. I go and get blood work tomorrow to check my hormones.
This is exactly how I felt, "hypocondriac". Part of it is I looked fit, exercised, younger for my age. But got full menopause at 52 and 6 months later I had the MS diagnosis.
Be your own advocate. Demand a referral to a neuro. It's hard sometimes as symptoms come and go. You feel better so you don't want to ask for anything. Then it comes again.
Don't wait.
Yeah at one point I was offered depression medicine. It sure seems like they treat women differently. My husband goes to the same Dr and has never been done that way. Can I ask what your symptoms were before your diagnosis?
The symptom that sent me to my Primary was woke up one morning & left arm was numb to my fingers. Scheduled appointment with my Primary, who was a very good doctor & he set up for an MRI immediately. Will always believe he had an idea of what the problem was looking back on previous visits, fatigue, muscle spasms, depression, anxiety. He also had other patients with MS.Within 3 days he called me giving me the MS diagnosis & referral to a Neurologist. The Neurologist told me I had had MS for a number of years. The MRI showed many lesions on my brain & spine.
Now that I know the many symptoms of MS, had had some of those before the diagnosis & thought nothing about it.
19 years ago & thankful everyday that I'm still walking & so far have no serious effects.
Yes whether your sympons are MS or maybe something else you do need to see a doctor about them. Either starting with your Primary or straight to a Neurologist.
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