Hello family it's Fancy. After reading literally hundreds and hundreds post and talking to just as many family members in our chat room this post is long overdue. I was personally amazed at how many people I spoke to had swallowing issues just like me. It seems MS loves to attack the esophagus and cause swallowing issues in quite a few MS patients.
So I've compiled my three top symptoms. I hope you can all add to the list and or embellish upon what we've already done. Here goes my shortlist.
My top three symptoms that drive me the most nuts are:
1. My balance issues or lack thereof. Not only is this a nuisance and something that makes me extremely jealous of the average person just simply walking down the street without thinking about walking it can also be a very big health hazard as well.
2. Bladder and bowel incontinence. This issue has to be the most embarrassing of all issues. It plays upon your psyche and is the biggest issue I have with starting my depression, anxiety, and severe mood swings.
3. Esophageal spasms, choking, and complete airway blockage of the throat. For the longest time I thought this was my issue and my issue alone. Got so bad probably a couple times a month I would wind up on the floor choking so hard that I wasn't sure I wasn't about to pass out. I used to tell my husband don't worry if I pass out all relaxed and the choking will stop. Well once my doctor found out about my episodes she had a heart-to-heart with me and informed me that because it is an esophageal spasm the very real possibility is a spasm could not affected by my lack of Consciousness and I would choke to death. I have certain triggers that really set me off such as not chewing meet well enough, small particles like rice getting caught in my throat, or real strong spicy things like salad dressings or dips excetera. After the first focal swallow study failed miserably because I have no toking episodes whatsoever on their Bland Jello consistency food they gave me to swallow and watch I got signed up for a second study. When I came in for the second swallow study I brought from home things with me that I knew would set off my choking spasms. Well it worked and I started choking in front of them and they finally found out that I was having esophageal spasms. The doctor prescribed an old anti-seizure medicine for me to help tranq my esophagus and it has cut down on my choking episode good 80 to 85%. And those that I have don't seem nearly as severe or I can break through them in a matter of a minute or two instead of getting into real trouble.
I look forward to everyone's responses to this post. Please share with the rest of us what your worst symptoms are, what has work to help control them, and or go into more detail about symptoms you have that I've already listed and what works for you help control them . Remember knowledge is power so let's share the power with each other. Remember as always together we are stronger! Fancy.💪👍