Unnumbered Post try as I might 2 A... - My MSAA Community

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Unnumbered Post try as I might 2 Aug 2021

RoyceNewton profile image
4 Replies

Good morning to "YOU" my beloved ms family. As always my hope for "YOU" is that last night brought "YOU" quiet and restful sleep. Mine was in turmoil and I do not have any idea why. The ms gremlins were running rampant last night, just enough to mess things up, BUT this is normal. What I expect from this sneaky diabolical disease. It knows no end and my control over it may be good, but it will NEVER be total. So, in my case, grin and bear it. What happens, happens and I will keep coping. Plans are just ideas, reality may have other things in mind.

There is only one thing ever set in stone, I WILL TAKE MY DISEASE-MODIFYING THERAPY( DMT). The rest will happen if it happens. Be flexible with your life. Ironclad decisions only lead to disappointment, be flexible. Be easy on yourself. If "YOU" aren't, how can "YOU" expect others to be? Be like bamboo, bend with situations. Be like seagrass, go with the flow. Do not be a stubborn old tree, blown over and uprooted in the winds for life.

I will try never to tell "YOU" this is an easy life with ms. It is Not, it demands a lot of us all. "YOU" may not believe it at times but within "YOU" is the resilience to survive through the many years "YOU" have with ms. I have been trying for many years to make it go away. It will NOT.

Royce ( your ms writer and Brother)

ms is mine for LIFE, but it will be my life.

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RoyceNewton profile image
RoyceNewton
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4 Replies

Hi Royce😊Unfortunately, you are right!!!

You cannot bury your head in the sand ...YOU must live with this malady , all your life..

😊Geetings , your MS sister & warrior .

🙏💓Lisa💕

hairbrain4 profile image
hairbrain4

I believe the ms gremlins were at my house the night before! They must be making their rounds. And yes plans are made to be broken. Chin up, accept, take care of yourself, and move on.

Violonchelo profile image
Violonchelo

Is no better don’t think about MS? When a child have pain in his leg, is better don’t to tell him nothing . So his pain disappear , and he doesn’t cry.

twooldcrows profile image
twooldcrows

all so true we will deal with and go with the flow of it all ...ahhahah...it is okay to have our times it gives us some grieve to know that it is still here but that is okay for we find a way to deal with it and did also have the gremlins bothering while trying to sleep also for me last night which is last night after we got back from the long trip back from the beach ...long trip back from some fun for a week ...love it the whole time would of loved to stayed longer ...but it is what it is with the doctors needed my husband this week for a couple days so we had to come home ...this august 8 th ....hope all had some great days with some fun too....love and happiness....

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