Good morning MY ms family,.I hope that “YOU” had a goods nights sleep last night. At least better than me. It took me ages to fall asleep, then, of course, the toilet called. jJst to remind me and that was the end of the night's sleep. Oh the joys of ms and old age, I remember when. Haha, of course, we can all remember when, those were the old days. We have to live NOW and that means changing things. Adapting at every step to what is happening to us NOW. Some might say our new normal, whatever that normal might be. We have Relapsing-Remitting ms (RRms), an incurable, progressive disease of the Central Nervous System (CNS). That is OUR new normal. How we decide to handle that as is always, it is up to us as individuals how. “YOU” should realize by now my opinion\thoughts on that subject.
Start with a plan. Modify that plan as “YOU” need to over the years, but do have a plan. I will make the first step easy. Take Disease-Modifying Therapy (DMT), which one “YOU” may ask there are so many to choose from. Again I will make it easy. Ocrevus, a 6 monthly infusion I believe. Infusion means “YOU” go somewhere have a needle put in “YOU” and a drip for a few hours. Technically I may not be 100% accurate but that is the gist, and “YOU” should your own research with everything ms related. There are side-effects but this is life with ms, there are always side-effects. Drink too much tea and “YOU” will be peeing all night, another side-effect.
That is your first step done for “YOU”, easy wasn’t it? Now comes the hard part. There are many things that must change, many things to do. I will not list them all, I am sure I have forgotten many or just am far to lazy to bother doing them, as good as they may be for me. 20+ years in this ms game and I have come to accept many things that I never thought I would. “YOU” will as well over your life, this is normal. Life with ms involves a lot of change. A lot of adaption to new circumstances, a lot of adaption to new events.
It is not for “YOU” to merely give up, run to your corner and endlessly weep. NO “YOU” are better than that, much better. It is for “YOU” too stand straight and tall, shoulders back and stride forward into an unknown future that nobody can describe to “YOU”, but to go forward none the less. Go forward and do the absolute best for yourself that “YOU” can and then when “YOU” have done the best for yourself, maybe do it again and do better. I am serious, try harder.
ms is not an easy two aspirins and a little rest disease. It is serious. Act like it. Do not let yourself be pushed around, shoved back and forth at others will. Stand your ground. This is your life, live it the way that suits YOU the best. Do not wait and see, waiting and seeing means disability of some sort. Anybody suggests that and ask them if they are willing to pay for your future needs. This condition can get worse, much worse. Start immediately taking action. No matter how small it may be. Be stoic\steadfast in your resolves to do your best no matter how many years it takes. always act as though your ms will last a very long time. Do things and make decisions to make your life as easy as “YOU” can. Be smart, be careful and keep your ms under some sort of control, good luck.
Royce (your ms writer)
this is a lifetime condition, I expect 40 to 50 years out of mine. Yours might be longer
