Unnumbered Post As a family 9 Jan ... - My MSAA Community

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Unnumbered Post As a family 9 Jan 2021

RoyceNewton profile image
9 Replies

Good morning my beloved ms Sisters and Brothers. Today is Saturday, the week is over tonight and I hope it went well for you. I have been quiet for a few days, watching but limiting my comments. If something is important I will direct message "YOU", I am still watching :-). Sometimes letting yourself stand back and cool off is a good idea. This is a large family with many different opinions and sadly some malicious troublemakers, like my x wife who should know better and keep there mouth shut. Let us get on with supporting each other and supporting that Newby (Newly diagnosed person) who is scared and does not know what to do, where to turn.

Firstly, keep all your records, then get used to needles. "YOU" are going to have a lot of them in your long ms life. The disease is progressive. That does not mean "YOU" are automatically bound for a wheelchair. It does mean the disease is constantly attacking "YOU", many "YOU" might not even notice. 20+ years, I am not using any mobility aid, "YOU" may be the same.

Be careful what "YOU" say. Think twice about it. Think 3 times before "YOU" react. Why start a squabble, it is not worth it.

Take your Disease-Modifying Therapy (DMT) and have a good life. It is something we all have to work at, put in the work.

Royce (your ms writer and Brother

This is a life that you can live well and succeed at

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RoyceNewton profile image
RoyceNewton
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9 Replies
Sandydemop profile image
Sandydemop

There is a phrase that I learned which might be helpful in this situation:Does it need to be said?

Does it need to be said right now?

Does it need to be said by me?

If you get three yesses then think again and possibly say it.

If you don't get three yesses cierra la boca

Frances_B profile image
Frances_B in reply toSandydemop

Another dimension to that could be put as "Don't jump on the bandwagon until you find out where it's come from. where it's going, and whether you actually need to jump on it........"

Midgey_Midge06 profile image
Midgey_Midge06 in reply toFrances_B

Nice one!

Tulip77 profile image
Tulip77

I was worried when I saw you had not posted for a few days. Glad you weren’t made to feel that your posts weren’t appreciated by many. I learn a lot from your posts. Thank you.

I’ve learned the hard way to think before I speak. Especially after MS. I have hurt some people that I never wanted to hurt. I have to sit on it for a few days before responding when I am upset. By then I am cool and not so angry or hurt. Then I can respond, if necessary, calmly.

Midgey_Midge06 profile image
Midgey_Midge06 in reply toTulip77

I love his posts. Even if i dont post for months at a time i will come here just to read his. They truly make my day. And taught me things!

Hi Royce😊

I agree- why start a disagreement- if it's not worth it. I always say " you have to pick & chose your " fights!"Afterall, we have to conserve Our Energies!" Lol 🤣😂🤣

twooldcrows profile image
twooldcrows

sure hope all read this for this site we never had the bs that is going on and it is ruining the site for i don't read lots of the bs by certain ones...have a wonderful day may it be filled with love and happiness...smile ,laugh do what ever makes you feel even better..... take care and be safe and may we get back to just the originals ...

Violonchelo profile image
Violonchelo

👍👍👍

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