I'm absolutely fine when I'm stood up and moving about. But the moment I plonk myself in a chair or the sofa I'm done for. It doesn't take long before my eyes are drooping and I'm doing the nodding dog. Half the time I haven't even realized I've gone. I've got in the habit of setting an alarm for 30-45 mins when I sit down so I don't sleep too long. Sometimes an alarm isn't always needed as I have a habit of nursing a cup of tea/coffee in my hand and forget I'm holding it (see my previous post for details 😂)
Am I over doing it perhaps? Or is anyone else like this.
Written by
HeatherW82
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Sorry to hear you have such extreme exhaustion. By early evening once I sit down I'm done for the day. I don't hardly ever nap. Just get zombified. I don't like to nap because I feel worse. I may just need to sit or lie down when exhausted. The longer I sit or lie the more my body falls asleep. If I'm leaning back, my back falls asleep. If I'm leaning on my arm, it falls asleep. Numb/tingling, I mean by body falling asleep. When sleeping in bed my arms and legs go to sleep. I hate this. I wonder if your blood flow slows down and you fall asleep.
i also know the feeling ..we are just doing to much but it is easy to do this time of year ...so much going on and it is fun ...take care and get some good rest even maybe a nap in between will help...
Lately, the past two weeks, I have done nothing but sleep. So I can really relate to your post. I am sleeping about 15-16 hours a day. All I have to do is sit down or lay down. I am going to get a sleep study done to find out what kind of quality sleep I get at night. It has become embarrassing.
I often feel this way ,it comes and goes. Get your vitals checked to make sure its not another problem brewing. Us folks with MS are victims of circulation problems. I have a muscle roller thingy that I roll over my legs and calves when I feel this way. ( looks like a small rolling pin ) It takes little effort, feels good, and keeps me awake. All in all, I feel your pain. frustrating.
I feel like that now, but I know it's not something wrong. We are working all day long installing our kitchen! I ache, too. My husband has fallen asleep holding his cup of coffee. I don't know how he doesn't spill it in his lap! That's talent!
You may be just going beyond your limit without realizing it but you may not be getting good "quality" sleep as well. Ask your doctor about doing a sleep study. Also ask about getting your iron and vitamin d levels checked. If you're low on those, that can also cause fatigue that piles on top of the MS fatigue.
After an active morning I have the same issue. The doctor has prescribed an afternoon dose of Ritilian to help with my energy level but even with that if I don’t keep moving I'm done. I often have to take a nap for upwards 2 hours.
Could it be related to any medications you're taking? I only felt like that when I had a relapse and pretty much slept for 3 days. What does your doctor have to say about it?
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POST #2 I WAS HAVING A BETTER DAY UNTIL I FELL:(
