Can this illness be anymore confusing, after 19 years it still manages to play unexpected tricks. When I say Tricksy I mean Tricksy. Even with the absolute BEST of management, observation, protocols, learn to live with & expected the unexpected.
Just remember that there are miles and miles of nerves in your body. ms attacks the myelin sheath so thats a LOT of nerve real estate that can short circuit.
Accept the unexpected and have a nice day, it is going to be different.