I have been living with dizziness for the last six months
Though I am still not diagnosed with MS I have brain lesions and I have the presence of oligoclonal bands
It’s a matter of time before I am diagnosed with MS
Have you all been living with dizziness ?
is there no end to it ?
and is that one of the main reason for the balance issue ?
I had been having dizziness and headache 🤕 for a while and related it to ms. Went to new Chropractor for lower back issues and told him my other problems. He checked me out and used a mechanical machine to adjust my vertebras and worked on my neck also. Had me sit up for a minute and asked how I was doing and my headache and dizziness was gone. Been a week now and I go back in Monday for further care. Hadn’t thought it could be related to upper neck needing adjustments 👍🙏. Yours may not be the same but I think we get in habit blaming everything on ms. Good luck with your outcome 🙏 Ken 🐾🐾🐾🐾
easy answer. I have had Relapsing-Remitting ms for 20+ years and I only get dizzy if I sit up to quick or twirl. So no, it is not and yes it may be. RRms really does require a neurologist to identify and sometimes many tests. It could be something a lot less major. Good luck on finding your answer.
for me to keep it at bay ...i just don't turn my head fast for that is the worse of it ...good luck i hope it settles down for you ...my did for i think before i move the head .....love and happiness...
I get dizzy spells a few times a week. Usually when I am at work. It’s not vertigo. It’s dizziness. I read someone described it as being under water and that is very similar to how I feel. I hate it!
Did you consult your neuro about this ?
I mentioned it during my last appt a few weeks ago, but he didn’t say anything about it.
Hello @Tulip77 I know this is an oldpost but I’m wondering if you wouldn’t mind sharing how your dizziness has been since your post? Dizziness is something I’ve dealt with on and off since the 90s with my MS. I’m having a flare or whatever you want to call it right now. I’m wondering if you have any suggestions that might help.
My dizziness comes and goes , it's hard to tell if it is balance issues or vertigo. Be careful, falls can be painful.
I had two kinds of dizziness/vertigo; when it feels like I am spinning (uncomfortable but I could still walk and do everything just more slowly) and the worst is when the world was spinning in all different directions around me (couldn't walk as I couldn't tell where anything was around me) fortunately this one wouldn't last more than a few minutes at a time. I started taking Gabapentin at bedtime which helped but did not eliminate completely and also started going to a neurologic chiropractor. I was still getting dizzy when turning over in bed and occasionally when just sitting in a chair. About a year after it started I went to PT to help with leg weakness and got dizzy during my assessment. The therapist did the Epley maneuver on me and I haven't had it when turning over in bed since. I only get the sensation it is about to start when I am sitting in a chair but goes away before the spinning sensation starts. I increased my Gabapentin dose from 300mg to 400mg a couple months ago and haven't had that anymore either. I saw my neurologist a couple weeks ago and he said the Epley maneuver success is tied to the person performing it and that he is not good at it. I would advise seeing an ENT or a physical therapist to have it done and see if it helps.
Many symptoms can have causes other than MS even if you have MS so best to rule out other causes.
My vertigo comes and goes. But you should also get your ears checked to make sure you don't have an infection that can cause the vertigo. If no infection go to chiropractor to get your spinal cord disks are properly aligned as that can throw you off as well. The neurologist can check for other issues as well that might be the cause.
It comes and goes as do so many of the symptoms we experience on this journey.
After finding out whether or not you have an ear infection (which is unlikely given how long you've had the dizziness for), your next port of call is to find out if your dizziness is caused by Benign Paroxysmal Positional Vertigo (BPPV) - what you are experiencing may have nothing to do with MS at all. Many people suffer for some considerable time with this (sometimes even years) - as ahrogers' post above notes from their own experience. Other people above who have also replied to you may also have this problem but have never had it diagnosed or treated which could be why they've lived with it for years - BPPV is often triggered by certain head or body movements, and apart from an ear infection is probably the most common cause of dizziness and vertigo. Drugs don't do any good with fixing BPPV - although sometime an anti-nausea drug can help a little with any nausea caused by it.
physiotas.com.au/benign-par...
mayoclinic.org/tests-proced...
A suitably trained physio can do the Epley manoeuvres required to treat BPPV, but quite often people need to get them done whenever the problem re-occurs. Generally a chiropractor would be the last on the list for fixes, as neck problems are usually more likely to be from muscles and ligaments and a physio is the one to treat those sorts of issues. If your muscles and ligaments are not working properly they can pull other things out of alignment and "treating" an "alignment problem" without dealing with the cause of it is not going to do anything much beyond provide temporary relief
physiotas.com.au/why-your-n...
And after everything else has been checked out and no other possible cause found to exist (e.g. Menieres disease etc), then Yes, it can be due to MS.
The Life We Face With Progressive MS
MS life with normal things...like the life
Diet: how long to clean the MS-wrecked body?
MS for at least 36 years
Secondary Progressive MS
