Surgery on C-Spine: The neurosurgeon... - My MSAA Community

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Surgery on C-Spine

greaterexp profile image
80 Replies

The neurosurgeon showed me what's going on with my c-spine with pictures from the MRI and flexion-extension X-rays. Surgery would likely fix all the issues, the main one being spinal cord and nerve compression causing me pain in my left arm and shoulder. For now, it waxes and wanes, so I can live with it, but it will probably only get worse. I could try to live with it, try some PT, or just have the surgery and get it taken care of. It would mean fusing 3 vertebrae and probably spending one night in the hospital. My cost, if done right now, would be probably pretty low, and it could be done before next year.

I only remember surgeries done many years ago. Does anyone have more recent experience?

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greaterexp profile image
greaterexp
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80 Replies
Turtlepie profile image
Turtlepie

You have my prayers. I hope the best for you

greaterexp profile image
greaterexp in reply to Turtlepie

Thank you!

falalalala profile image
falalalala

Good luck with whatever you decide:)

greaterexp profile image
greaterexp in reply to falalalala

Thank you!

🖐 yes, raising my hand here!

greaterexp profile image
greaterexp in reply to

Pro or con?

in reply to greaterexp

Definitely a “PRO”

I am better then I was but NOT where I would like to be

I wish I would have not been so stubborn, when I started having health issues....ie: weakness and numbness in my feet. Maybe it wouldn’t have got so bad...but I just kept working with it for a year and half.

As I have stated before....The Neurosurgeon wouldn’t give me any ‘guarantees’. He told me surgery, would hopefully keep me from being ‘bed-bound’.

My MRI looked terrible! I could see it ! He didn’t give me an option to wait, nor did I want to wait.

C4,5 & 6 Fused—-I think 🤔 I am actually an inch shorter

That had to clean up my neck and remove a vertebrae-

Spinal Cord damage....

Dr. says recovery can take up to 18 months or NOT with me because of the damage to my spinal cord.

Surgery was about 4 hours and “typically” home after a day in the hospital....but because I live alone, with no help, I was kept for two weeks....I ate bacon 🥓 everyday and did physical therapy too . I had to wear the neck brace for three months and was limited on lifting .

The actual incision (front) healed quickly and minimal scar—-blends in nicely, with my old lady wrinkles! 😃

It is not that bad dear.... I would recommend.

Before any more possible damage to your compression of the spinal cord.

Prayers 🙏 to you and feel free to ask me anything.

greaterexp profile image
greaterexp in reply to

Thank you so much!

JSSimp profile image
JSSimp

My prayers are with you. Always a hard decision to make when having surgery or trying to tolerate the symptoms. Praying you receive a clear answer. I’m scared of a colonoscopy right now and going back and forth.

greaterexp profile image
greaterexp in reply to JSSimp

Colonoscopies are such a breeze now, compared to years ago. No, the prep isn’t fun, but mine wasn’t bad. I went to sleep, woke up, and it was done. Pain free. Colon cancer is pretty tough, so it’s well worth getting the colonoscopy.

JSSimp profile image
JSSimp in reply to greaterexp

Thanks for the input.

mrsmike9 profile image
mrsmike9 in reply to greaterexp

Prep is gaggy but once that's done...piece of cake.

carolek572 profile image
carolek572CommunityAmbassador

I have not had any surgery that required a stay in the hospital, greaterexp ~ yet

I am curious as to what to expect with your upcoming surgery. Let us know when you decide to do it. :-D

erash profile image
erash

No personal experience. I would imagine tough decision (tougher given the pandemic). Wishing you well.

greaterexp profile image
greaterexp in reply to erash

Hubby is starting to have memory issues, and I need to consider that, too, as this will cause him stress.

erash profile image
erash in reply to greaterexp

So sorry—more complex for sure...

Morllyn profile image
Morllyn in reply to greaterexp

If you wait his memory issues may be worse and then you will have more reason not to have it done. If that is your main concern then have it done.

❤️ It is your decision though.

greaterexp profile image
greaterexp in reply to Morllyn

Those are my thoughts, too.

bxrmom profile image
bxrmom

I have heard good and bad things with any back surgery. You just need to make sure you have a great dr that has done this before and then make the decision this is what you want/need at this time. My thoughts are with you as you go through this. Keep us updated.

greaterexp profile image
greaterexp in reply to bxrmom

Thank you. I've checked into his record a bit, and it looks good.

bxrmom profile image
bxrmom in reply to greaterexp

That's always a comfort :)

lbenmaor profile image
lbenmaor

I will pray everything goes well.

Leslie

greaterexp profile image
greaterexp in reply to lbenmaor

Thank you!

in reply to lbenmaor

🙏🙏🙏🙏

greaterexp profile image
greaterexp in reply to

Thank you!

jimeka profile image
jimeka

I had an ACDF of C5&6. Went in one afternoon, next morning, hour and half surgery, went home next morning. They went in through my throat, nice neat line in a neck wrinkle. Throat was a bit horse for a few weeks after, but the pain in my right arm and my jaw disappeared in a couple of weeks. No issues about any of it. The major plus was I am not paralysed like they said would happen if I didn’t get it done. 🙏 as always , blessings Jimeka

in reply to jimeka

jimeka—-

👍

greaterexp profile image
greaterexp in reply to jimeka

Great! I think I'll get it over with.

Humbrd profile image
Humbrd in reply to jimeka

That is very encouraging to hear. Hoping greaterexp has relief from all her symptoms if she chooses to do the surgery. I have had problems with c5 and c6 for years and now to the spinal cord. They have mentioned surgery. But I'm not ready to do it. You always hear the unsuccessful stories like my neighbor. She had surgery and stayed in the hospital for weeks. She couldn't eat afterwards and they wanted to put in a feeding tube. So that really scared me. It is good to hear from others where it turned out well.

IFwczs profile image
IFwczs in reply to Humbrd

They say after the first fusion surgery, you need another one, and another one, and so on and so forth. I personally used to work with someone who needed 2 more fusion surgeries after the first one. He eventually ended up in a wheelchair.

Kenu profile image
Kenu

My brother had 3,4,and five fused and was back playing racketball 6 months later. Went really well, but he was in pretty good shape prior to surgery. Was walking five miles every day after 6 weeks. Everyone is different, but went well for him. Good luck on your decision 🤞👍🙏🤗 Ken 🐾🐾

greaterexp profile image
greaterexp in reply to Kenu

Mine would be the same vertebrae. Thank you for the encouragement!

Tazmanian profile image
Tazmanian

Good luck I hope everything turns out well

greaterexp profile image
greaterexp in reply to Tazmanian

Thank you!

janetb1968 profile image
janetb1968

So hope it all goes well for u honey xxxxx 🙏🙏🙏🙏

greaterexp profile image
greaterexp in reply to janetb1968

Thank you, you sweet thing!

cindyrn68 profile image
cindyrn68

I had the same surgery, C4-7, three years ago. As surgery goes, it was a very good experience. I went back to work 2 weeks later. I felt so much better afterwards! Until I fell and broke my neck about 2 years ago and messed everything up. Find a good neurosurgeon and get it evaluated. Praying you get the answers you need.

greaterexp profile image
greaterexp in reply to cindyrn68

Thank you for letting me know your results. I'm so sorry you had a bad fall. My sister-in-law recently had a bad fall with lots of damage, but she's doing much better. I hope you are now.

twooldcrows profile image
twooldcrows

prayers for a fast recovery ..take care and be safe...

greaterexp profile image
greaterexp in reply to twooldcrows

Thank you very much. I'll keep everyone posted on the surgery date.

MarkUpnorth profile image
MarkUpnorth

Just wishing you the best. Easy or not, if I was in your situation, I'd not give up. Yes big decision, but I only know of good, not all perfect, but good results.

greaterexp profile image
greaterexp in reply to MarkUpnorth

Thank you for taking the time to send some encouragement!

Brindisi1 profile image
Brindisi1

I know a prayerful decision. Prayers your way

greaterexp profile image
greaterexp in reply to Brindisi1

Bless you for those prayers!

pamgarner profile image
pamgarner

so sorry,don't let the timeline and money rush you into a decision,but i say fix it but there is no guarantee ,makes me nervous,i can only imagine you

greaterexp profile image
greaterexp in reply to pamgarner

Thank you so much. I think if insurance approves it, I will go ahead. There are many things to consider, but the timing seems best. I realize that there is a small risk of setting off a relapse, and there is a chance that the problems won't be fixed as well as we hope. There is risk with any surgery, but we have to weigh the risks against the benefits with each one.

pamgarner profile image
pamgarner in reply to greaterexp

what happened to guarantee's?

greaterexp profile image
greaterexp in reply to pamgarner

Wouldn't that be marvelous? Of course, that could work both ways!

IFwczs profile image
IFwczs

I am sure you've tried a chiropractor or several. Have you ever heard of Gonstead chiropractors?

greaterexp profile image
greaterexp in reply to IFwczs

Chiropractors could do nothing for all these issues, but thank you.

robster1 profile image
robster1

Well my friend you are covered/bathed in prayer. I too have cervical, thoracic & lumbar issues. Surgery on the later two. We love you and lift you to the Master physician. God bless you.

greaterexp profile image
greaterexp in reply to robster1

How encouraging and kind you are! Thank you and everyone who keeps me in prayer. It means so much!

in reply to robster1

robster1 , we got this!

ALL of us in prayer🙏...can hold greaterexp in prayer!

greaterexp profile image
greaterexp in reply to

You all are so wonderful! Bless you all, and thank you!

leking1 profile image
leking1

Love and prayers are with you, Linda

greaterexp profile image
greaterexp in reply to leking1

I very much appreciate both!

Peruzzot profile image
Peruzzot

Hope and prayers coming your way. I have no experience with that kind of surgery. But whatever you decide to do, I hope it works out best for you.

greaterexp profile image
greaterexp in reply to Peruzzot

Thank you. I feel sure I will do well. I will have to convince my sweet husband that there's nothing to stress about. I'll see if I can enlist some help from neighbors to check in on me to take the weight off of him, and I'll have meals ready so he doesn't have to worry about that. I'm more concerned for him than for me!

Humbrd profile image
Humbrd

Hoping you get relief if you decide to have the surgery. You have a positive attitude, so I believe you will do very well. 🍀

greaterexp profile image
greaterexp in reply to Humbrd

Thank you so much.

Smithnova profile image
Smithnova

Best of luck and prayers to you.

greaterexp profile image
greaterexp in reply to Smithnova

Thank you for your kind words!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Yup! Had it a yr ago!😂🤣😂 I spent an extra 2 nights at the hospital, because I'm alone.

Just listen to what the Dr says greaterexp if he says it's dangerous? Get it done! 🤗💕💕

greaterexp profile image
greaterexp in reply to Jesmcd2

Thank you so much. I'm just waiting to hear that it's been approved by insurance. I hope to get it done before the end of the year.

mrsmike9 profile image
mrsmike9

The only spinal fusing I've had personal experience with was my son who had an S for a backbone. He had his entire spine fused (and it made him "grow" 4 inches!) I always figure if I ever need that done, he did fine with the entire thing so I would be okay.

Prayers for you!

greaterexp profile image
greaterexp in reply to mrsmike9

Thank you so much.

Neworleanslady profile image
Neworleanslady

You could go check with physical therapy maybe see if they feel they could help you. Maybe just some traction would help for now.

greaterexp profile image
greaterexp in reply to Neworleanslady

He did offer PT with some traction. I'm just thinking it would be better in the long run to just get it fixed, as it probably will progress anyway.

Neworleanslady profile image
Neworleanslady in reply to greaterexp

It may and it may take constant attention/ traction on a regular basis. But if you were against surgery-

I found an inflatable neck brace that i do neck traction with. It feels so awesome. I use it to relieve carpal tunnel symptoms (that originate in my cervical spineI’m pretty sure). And to relieve neck pains. But maybe I’m not as involved as u

greaterexp profile image
greaterexp in reply to Neworleanslady

I’m so glad you found something that helps.

hairbrain4 profile image
hairbrain4

My husband had C3-C4-C5 fused 20 years ago and hasn't had much trouble since. He sets off the metal detectors at the airports cuz he has titanium plates instead of wire holding it all together. But he could use his arms afterward. He was a hairdresser and instructor and shaky hands didn't work too well for that. They have come a lot farther since then with technology.

greaterexp profile image
greaterexp in reply to hairbrain4

So true. I hope he’s still doing well.

ahrogers profile image
ahrogers

I know what you mean from what I saw as a nurse 30 years ago. Spinal surgeries were frequently having to be redone and didn't seem to help much. I have seen tremendous improvement in outcomes since the neurosurgeon specialty took it over from orthopedic surgeons.

I think I would get it done now. PT and that would likely provide only partial relief and take as much time to help as the recovery from surgery would or perhaps longer.

Praying for healing 🙏🙏

greaterexp profile image
greaterexp in reply to ahrogers

Thank you for responding! I didn't see great results all those years ago, and it gave me pause. I appreciate your encouragement.

CynthiaS profile image
CynthiaS

🙏🙏🙏🙏🙏

greaterexp profile image
greaterexp in reply to CynthiaS

Thank you!

anaishunter profile image
anaishunter

best wishes. My mom had 4 neck vertebrae fused because of RA damage and pain. Surgery was not a big deal and it brought her a lot of relief but, of course, she lost a bit in flexibility. Good luck.

greaterexp profile image
greaterexp in reply to anaishunter

Thank you. My biggest concern is loss of flexibility, too, but as long as I can keep sewing and quilting, I'll be thrilled.

mm1527mm profile image
mm1527mm

Sorry to hear you are dealing with this. Prayers that all goes well

greaterexp profile image
greaterexp in reply to mm1527mm

I sure appreciate it. Surgery is tomorrow at 1:45. Can't wait to have it over with!

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