Ocrevus infusion: Sitting in the chair... - My MSAA Community

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Ocrevus infusion

Yooper profile image
8 Replies

Sitting in the chair getting my 4th infusion. 1yr in. Haven't felt any different but I also don't seem to be getting worse.

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Yooper
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8 Replies
Iona60 profile image
Iona60

Have you had any follow up MRI s? My neurologist's hope for me is to not switch from rr to sp. I'm eight months in with no changes. I'm really hoping that the spasticity gets better.

Yooper profile image
Yooper in reply toIona60

My last MRI showed substantial enlargement of lesions. That's when I was switched from Copaxone to Ocrevus. Will get another MRI next year.

Iona60 profile image
Iona60 in reply toYooper

Thought you might have had one at the one year point for ocrevus. I was on copaxone for ten years. If ocrevus was around, I would have switched earlier. Tysabri scared me.

greaterexp profile image
greaterexp

In the world of MS, not getting worse is terrific news! Hurrah!

pamgarner profile image
pamgarner

If you have no more lesions, that would be the bomb! I just wonder for myself, if I don't do anything different like exercise should I expect anything different? I am trying ocrevus for the same reason, old med stopped working. Hope things are uphill for you

Yooper profile image
Yooper in reply topamgarner

Thanks. I pray 🙏 it will help you. We need to stop it and hopefully improve our MS symptoms until they find a cure. Keeping our faith during the struggle is important. God's Peace.

hairbrain4 profile image
hairbrain4

I'm still waiting for an appointment to get my first infusion. I'm praying it will stop any progression & stop some of the spasticity. Also have been on copaxone for 10 years with a 2 year techfidera try. That's the one I wish would have worked, so easy to take a pill twice a day. Hope things are getting better for you!

Yooper profile image
Yooper in reply tohairbrain4

I pray it works for you. It has not helped my spasms at all. I still take baclofen and diazepam for my spasms. I also use the Stick to help my tight hamstrings.

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