And Finally . . . For Awhile: And since I... - My MSAA Community

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And Finally . . . For Awhile

CrazyCatWom profile image
18 Replies

And since I also mentioned the New Mexico State Fair . . .

Since I had to go upstairs, fire up my office computer, and scroll through all the folders I have of hundreds of photos I have, looking for a few, it really had me realizing I really did used to have a life that was't hobbling off to doctors' appointments or vampires for blood tests, or speech pathologists to learn how to swallow again ::sigh::

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CrazyCatWom profile image
CrazyCatWom
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18 Replies
Tinker-Belle profile image
Tinker-Belle

Beautiful! I love this. Isn’t it fun to scroll though all the photos and think of so many happy times?

twooldcrows profile image
twooldcrows

wow what a cool picture ...yes you still have a life just look what you are showing all of us ...

Ali_B62 profile image
Ali_B62

Yes, we grieve for our previousl lives, don't we? We still have lives, though, I suppose the trick is to find a life we feel is worth living.🥰

in reply to Ali_B62

Very good post...

🤔🤔

I like that, hold onto memories of what life was..

But keep room for new and different ones.

goatgal profile image
goatgal

Beautiful photo, you have the eye needed for great shots! I've been doing a lot of jigsaw puzzles on line: this would make a complex one to challenge folks, or a fine custom puzzle as a gift to a friend.

Doubled51 profile image
Doubled51

I totally understand. I feel the same way about having a life and now only dr visits and blood test and of course MRIs. Absolutely not the life I was looking for at 68.😩😩.

Donnie

in reply to Doubled51

Donnie—-

My younger years....

I never thought I would make it this long (53)...lol.

Doubled51 profile image
Doubled51 in reply to

Like a good friend of mine when I was working that had a saying I always liked “if I knew I was going to live this long I would have taken better care of my body.” 😜🤪. The first 50 years or so of my I abused this body very badly and that’s putting it very mildly. I drank a battleship of Budweiser and more than my share of drugs. But I retired in 2001 and then I couldn’t afford anything which was a good thing.

Donnie

in reply to Doubled51

Agreed Donnie—

I am trying to better now, might be too late...

I am okay with that..

None of us are getting out of here alive...

My life has been ‘rich’

Peruzzot profile image
Peruzzot

Beautiful shot.

I thought I was the only one who called them vampires sucking me dry with blood tests. My blood vessels are no longer cooperative with them so they have to stick me multiple times to find a blood vessel.

mrsmike9 profile image
mrsmike9

You are fortunate to have had a life prior to MS. Mine was years and years of fighting for my disabled sons. All I really remember of their school years was fighting the schools and crying out of frustration. I really don't remember much of any good times.

in reply to mrsmike9

Darn it—-

Don’t know what to say to you mrsmike9buffering...

My heart ❤️ goes out to you...

All that you have gone thru...is for a reason...

A virtual hug for you and prayers 🙏

mrsmike9 profile image
mrsmike9 in reply to

Thank you. It's has been incredibly hard and unfortunately my husband had no idea how or what to do with special needs kids. I was the one who had to fight for everything. One time I told him HE had to be the one to take a day off work to go to Chicago in the Shrine van to take our youngest to his appointment there. When he got back he said what a terrible trip that was and he never wanted to do it again. So at least he got a taste of my multiple trips a year with the youngest with the physical stuff.

Our other son who was brain damaged when we got him...well, he never even tried to figure out what would be the best for him. Specialist after specialist I took that one to, sometimes paying said specialist what FAS meant! It was nothing but trial after trial. All that fighting is paying off now. The boys are in a pretty good spot now. I've got a great team working with the FAS one now and even an answer to prayer for him to move in to where he can be as independent as he can be.

Of course now my husband has me...a disabled wife! So far I'm not too bad and there has been one time where I MADE him leave work early to go with me to an appointment as I was so nervous as to what I thought I would be told. He was good about it. Hopefully he still will be if I get worse. Knock wood!

in reply to mrsmike9

Oh my dear...

My heart ❤️ goes out to you..

When I read your messages/posts... I just wanna hug 🤗 you and definitely, say a prayer 🙏 for you and your children too.

You sound like an AMAZING woman!

mrsmike9 profile image
mrsmike9 in reply to

You are sweet. I'm a strong one, anyway! Maybe not when I was young but adopting these kids...IRON woman!

CrazyCatWom profile image
CrazyCatWom in reply to mrsmike9

This life wasn't prior to MS. I've had a MS diagnosis for 25 years! All this life, however, was prior to my skull becoming a bowl for over-cooked speghetti marinara in 2018--3 brain anurysms.

hairbrain4 profile image
hairbrain4

Well, at least you have those memories on"film"! You don't have to try to remember where you've been (only where you put the pics. LOL) So far what I've seen they are great pics!

carolek572 profile image
carolek572CommunityAmbassador

We do what we need to do and it so often replaces what we want to do, CrazyCatWom but it doesn't need to be that way... Your photo is very beautiful and it brings me back to my childhood when I would visit amusement parks. Thank you for bringing me back to a time when life was carefree! :-D

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