Good morning my ms family I hope everybody is well and had a good night, and an even better day today. An easy question firstly today. As everything I put in my mouth ends up on my shirt do “YOU” possibly have a recommendation for a colour that does not stain or show too much. Yes, I wear a bib, but I do not wear it constantly so morning Starbucks does leak out the side of my mouth. One of the advantages of Trigeminal Neuralgia Surgery. It does not feel like an ice pick in the face anymore, but I can not feel half my mouth. Joy of joy, the wonderful things that ms does to our bodies.
Thank you for that, now on to the important stuff, “YOU”. I have read comments over the years that we all should be on anti-depressant medicine immediately upon diagnosis(Dx). REMEMBER I am NOT a trained medical professional just somebody with ms. Do not take what I say as total the whole truth, simply an option. I have nothing in the game of your life so ignore me if “YOU” want, I will not be hurt. I would suggest that doing tat taking more pills is not the wisest of things to do. Are “YOU” upset, hurt, lost crying endlessly. Of course “YOU” are, your doctor just told “YOU” that “YOU” have an incurable, progressive, debilitating illness. All the old literature had pictures of frail-looking older women in wheelchairs. That is a picture that at 29 (Me), I most certainly did not want to face. Thankfully we are better off today. Today we have a wide range of disease-Modifying therapy (DMT), it will not cure “YOU” nothing will, but it is better than do nothing. So, of course, “YOU” are sad. I do not think “YOU” would be human if “YOU” were not. I am not sure that taking amounts of anti-depressant drugs are going to make “YOU” feel better. Perhaps some psychotherapy might be better. Avoid the pills, talk to somebody. Open up, state your fears, your apprehensions, write it down. Journal your days. Pet your dog, if “YOU” have to, your cat. As “YOU” can tell I am not a cat person, dog person, yes. Cat, not so much.
The point being, do not immediately turn to drugs. Yes, you most certainly need DMT, get over it “YOU” do, but other things, perhaps “YOU” look at first before “YOU” start popping lots of pills. Doctors generally want to help “YOU” sod they will offer the easiest way to solve a problem first. A pill is much h easier to prescribe than multiple hours of therapy. Bare that in mind. I have found over my many years that crying is a great release. In the beginning, I cried a lot, and I mean a lot. It released some of but now all the pain. I think dulling the pain is not always a great idea. She who must be obeyed dislikes my saying that pain is good, it reminds “YOU” that “YOU” are alive and have feelings”. Things are happening to “YOU” that require effort to understand. To come to terms with. I hate with a passion, needles, no not hate, scared of. Back when I first started my only DMT option was a once every other day subcutaneous injection. I was scared of it, I did not like it, but I never missed a shot. Maybe one or two when I was chasing a woman on the other side of the world. I caught her so it was worth it. I did things, sacrificed so that I might have a better future. “YOU” might look at things this way. It is very okay to be sad, it is normal we all have been, “YOU” are no different. BUT, without a doubt “YOU will learn to live with this disease, it just may take a while (years) and that is normal. We are all different and we adapt at our own pace.
Royce (your ms writer)
there is not a timeline for this disease. You will come to terms with it at your own rate
