Good Morning, my ms family, I hope as always that “YOU” are well. The mischievousness of our travelling companion behaved last night. I would like to say well-behaved but we all know that ms is never well behaved. “YOU” may do everything correctly, or so “YOU,” think but ms finds a way around all that “YOU” do and torments “YOU”. Do not despair, continue trying hard and doing your best. Every little effort “YOU” make does thwart ms, makes it try a different way to get at “YOU”. This is the reason why “YOU” should take your Disease-Modifying Therapy(DMT). Not with the expectations of a cure, nothing will cure it, but as a way of thwarting some of its attacks upon “YOU”. Perhaps keeping “YOU” on your feet for a little longer.
With this incurable, progressive illness we are doing everything that we can to stay able to look after ourselves longer, to maintain our independence. I will always recommend DMT for your ms treatment, started earlier and kept up no matter what. DMT will not cure “YOU”, it will not stop episodes(exacerbations, attacks) It slows them down, “YOU” get fewer and this is what “YOU” want to happen. Fewer ms episodes = DMT, does that make sense? Do “YOU” understand why “YOU” do not wait and see, why “YOU” do not take a break. Why “YOU” take your medicine as your life depends upon it. NO “YOU” are NOT going to die, but without DMT “YOU” will get worse and that is an unfortunate fact of this disease.
Now put your thinking hats on, (msAA market orange hats and call theme ms thinking hats, I will buy a few). I highly recommend introducing some humour into our situation. Just think how funny we all would look wearing an orange ms hat to an msAA dinner or event, truly silly. Anyway back to the question. Have “YOU” come to terms with your ms? Are “YOU” at ease with it? Have you made it an inconvenient, annoying part of your life? during yesterdays drive for She Who Must Be Obeyed visit to her doctor as I starred at the beautiful day I thought about this. I do not drive anymore, I have not for 20+ years, except very occasionally 100ft (30 meters) to the mailbox when I am too lazy to walk. Am I at ease with what after all this time, ms has done to my body, to my dreams and hopes for my life? Are “YOU”? Serious question, are “YOU”? It is okay to say no, I think that might be normal. One day “YOU” might think about that question again and say yes, yes I have learned to accept what is happening to me. I do not understand everything, but I know enough to be at ease with it. I accept what happens< I make efforts to thwart it when I can. I have adapted my behaviours not to give it opportunities to attack me. Sometimes I win, sometimes I lose and I am at ease with that
Developing this attitude towards your life may take time. Do not rush it. It will come when “YOU” are ready to receive it and not a day before. We all are on a journey, and it will take your whole life, years and years and years. When “YOU” are at ease with yourself, perhaps pass it along to somebody else, let this wisdom and ease with life flow from “YOU”. I think that might make all that we go through in our ms lives worthwhile.
Royce (YOUR ms writer)
What do you think? Have you come to terms with your ms?
wwisdom, the cheque (check) is in the mail
