Post 692 Get out of your head 25 O... - My MSAA Community

My MSAA Community

9,405 members21,193 posts

Post 692 Get out of your head 25 Oct 2020

RoyceNewton profile image
6 Replies

Good morning beloved ms family (YOU) I really do love “YOU all I write to “YOU every day and have only nice thoughts for “YOU" it must be love. Okay now that we have determined that how was last nights sleep? We stayed up late watching truly garbage television. We are addicted to rubbish on the Lifetime channel. it is always good to watch how crazy people are and take bets on who we think is going to last as a marriage. Some of these people are really weird.

Today we shall talk about getting out of your head. NO not drugs and booze your ms head. I understand at first “YOU” might be overwhelmed. A chronic, incurable medical condition is a lot to get your self around. Rest assured “YOU” will come to your own terms with it. “YOU” will get to a point where “YOU” do not make every moment of every day as a battle. “YOU” will wear the ms warrior t-shirt, the mask and think I am no warrior. I do not like being on the losing side. It is okay, I wear my mask and everyday wish it did not say ms warrior. I like the t-shirts that say “I am not drunk, I have ms, well maybe a little drunk”. I have a rather warped sense of humour at times I am told.

Get out of your head. “YOU” have ms, “YOU” are taking the strongest Disease-modifying Therapy (DMT), “YOU” exercise, eat well, do not smoke and limit your drinking. There are a few other things that “YOU” might do but none that will make RRms go away. It is ours until the day we pass. Get out of your head, this is reality. Do not dwell on it, do not be saddened by it. This IS our lot in life. Maybe not the next one, but most certainly this one, Get out of your head, do not worry, fret, be depressed. What will be will be.

Why do “YOU” not make what will be into something a little brighter for yourself. Move yourself from those dark days and nights of ms fear into something brighter. I like to imagine initially I was in a cold dark cave. I did not know where I was going to go, all I could see was darkness. All I could feel was cold. I asked myself was this my life was I stuck here. I started DMT and I started to see a little brightness. I started exercising, eating right and as I did a little light started to come into my life. I learned more about my condition, asked many questions. I started to work out that RRms was not good but I could make it not bad, so can “YOU”. As this illness affects everybody differently, your solution may be different, BUT my RRms sibling there is a solution for “YOU”. Get out of your head. Do not dwell on what might go wrong for “YOU”. It probably won’t. Make good things happen for “YOU”.

Imagine yourself NOT in the dark of RRms BUT in the dim light travelling towards the brightest that “YOU” can imagine for yourself. Have hope, dream. Never give up on yourself, strive for one more. Whatever it is only one more. Do not sell yourself short, this is a doable illness. Frustrating, sneaky but nothing that “YOU” can not come to terms with a do.

Royce (your ms writer and brother)

believe in yourself and dream huge. now make it happen with a smile on your face and in your heart

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
6 Replies
twooldcrows profile image
twooldcrows

i hope all of the newbys with this monster are introduced to your writings for if i had read them it would of really helped me lots so relax and not look at the chair right off the bat ...and to know things do get better ...i know i am good example for yesterday well actually the last three days i have been taking big branches off of some trees that we want to take down for they are dying and that we also found out they are a real fire danger in our area...so i have been cutting them down and cutting the branches off the limbs well i also dumped one on our fence so had to go onto the neighbors yard and cut it up over there and throw all the big and little limbs over the fence for i could get the pickup back there to load it all up ...so was a major mess and my husband says oh you landed it on the fence hahahh. we laughed but still more work which is okay but just slowed down my work of trying to get the whole tree out and still have to do that we have five together to do ...they are very tall so it will take awhile but feels so good to be doing some good hard work ...at the end of the day well actually i think it was like two aclock but i was very very tired and sore but sure makes me happy to be able to do it ...of course with finding out it is a danger of a fast fire because of them makes it probably to the point of i know i have to do it ...with all of the fires here in Oregon around us sure don't want to add to the fuel for a fire...again thank you for all of our encouragement that we can keep going ...i am 66years old and have had it since 2004 and i have had walking problems in the beginning so it doesn't stop us...love and much happiness...

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

sounds like a very productive few days. I have not had to cut any trees down since last I was in Australia and that was a clump of Bamboo, gees that was some work nut I did it eventually., well done to you.

Always good words Royce 👍

Thanks ❤️

Amore55 profile image
Amore55

Dear Royce, everyone close to me, friends and family, say I spend too much time time in my head! I really appreciated your post. I seldom think of MS, just other things. It can make me overwhelmed!

I have a great tee shirt that says I don’t trip, I do random gravity checks! I love it! Everyone stops to read it, then asks, why?

Have a great day, my friend, and be sure that we all love you in return! Kelly xx

RoyceNewton profile image
RoyceNewton in reply toAmore55

I like that shirt, I must find it, stay well Sis

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply toAmore55

Hey Kelly, I want that t-shirt🤣😂😂🤣🤣

I also am "stuck" in my head!!! Thankfully , I have 👍 people in my life🙏🙏🙏

❤Lisa💕

Not what you're looking for?

You may also like...

Unnumbered post 6000+ members 27 Oct 2020

G'day and welcome to the family. I am sorry that "YOU" got to join us but now that "YOU" have,...
RoyceNewton profile image

Post 707 Sometimes you just get a little down 28 Oct 2020

Good Morning my beloved ms family. Everyone okay? No ms gremlins upsetting your rest last...
RoyceNewton profile image

Post 605 A Kind word 25 FEB 2020

It is tot5ally free. It costs “YOU” absolutely nothing. There actually maybe some very positive...
RoyceNewton profile image

Post 653 Your advantage 17 June 2020

G’Day my ms Family. This struck me as I was reading your mail, so I guess it is a little late in...
RoyceNewton profile image

Post 703 ms may be bad but 16 Oct 2020

G’day my beloved ms family. We are all well I hope. Slept well, little to no ms gremlins...
RoyceNewton profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.